SynthesisBMJ global health2020
The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review.
Synthesis in BMJ global health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 76 papers, 7 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
76 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Models of Care and Interventions to Improve Person-Centred Care for Older People in Long-Term Care Facilities: A Mixed Methods Systematic Review.Journal of advanced nursing · 2026Pooled it
- Pooled it
- Fostering nurse-patient relationships in palliative care: An integrative review with narrative synthesis.Palliative medicine · 2024Pooled it
- Pooled it
- Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review.Palliative medicine · 2023Pooled it
- Identifying the unmet supportive care needs of people affected by kidney cancer: a systematic review.Journal of cancer survivorship : research and practice · 2022Pooled it
- A systematic review of impact of person-centred interventions for serious physical illness in terms of outcomes and costs.BMJ open · 2022Pooled it
- Factors associated with distress over time in women with breast cancer undergoing radiotherapy: insights from a pilot study assessing a digital information tool.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Trial
- EuroHePP: The European Toolkit to Strengthen National Responses for the Elimination of Viral Hepatitis in Prisons.Liver international : official journal of the International Association for the Study of the Liver · 2026Review
- Recommendations from the Spanish Society of Medical Oncology to advance the humanization in cancer care.Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico · 2026Review
- A roadmap for developing a program to self-manage post-traumatic knee osteoarthritis risk.Osteoarthritis and cartilage open · 2026Article
- Translation and Psychometric Properties of the Turkish Version of the Person-Centred Climate Questionnaire-Patient Version: A Methodological Study.Nursing open · 2026Article
- Multimorbidity care during TB treatment: no longer if, but how.IJTLD open · 2026Article
- Access to choice‑enabled healthcare providers among children and adults with intellectual disabilities in comparison with the general population (IDcare).BMC health services research · 2026Article
- Online Patient Reviews for Continuous Quality Improvement: Topic Modeling of Hospital Service Quality in Taiwan and the United States.Healthcare (Basel, Switzerland) · 2026Article
- The impact of shared decision-making on patient-reported outcomes in Traditional Chinese Medicine in Shanghai, China: a cross-sectional study using structural equation modeling.Integrative medicine research · 2026Article
- Towards Establishing Shared Terminology for Person-Centred Care: A Modified Delphi Study With Consumers and Health Professionals.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Systematic review of cardiovascular care delivery across health systems in the Asia-Pacific: a regional roadmap for strengthening cardiovascular care.The Lancet regional health. Western Pacific · 2026Article
- Person-Centered Care in Digital Health Interventions for Chronic Diseases: A Systematic Review.Healthcare (Basel, Switzerland) · 2026Review
- Bridging communication gaps to improve adult congenital heart disease care: patient perspectives from a qualitative study.BMC health services research · 2026Article
16 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionPerson-centred care has become internationally recognised as a critical attribute of high-quality healthcare. However, the concept has been criticised for being poorly theorised and operationalised. Serious illness is especially aligned with the need for person-centredness, usually necessitating involvement of significant others, management of clinical uncertainty, high-quality communication and joint decision-making to deliver care concordant with patient preferences. This review aimed to identify and appraise the empirical evidence underpinning conceptualisations of 'person-centredness' for serious illness.
methodsSearch strategy conducted in May 2020. Databases: CINAHL, Embase, PubMed, Ovid Global Health, MEDLINE and PsycINFO. Free text search terms related to (1) person-centredness, (2) serious illness and (3) concept/practice. Tabulation, textual description and narrative synthesis were performed, and quality appraisal conducted using QualSyst tools. Santana
resultsPRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) flow data: n=12,446 studies screened by title/abstract, n=144 full articles assessed for eligibility, n=18 studies retained. All studies (n=18) are from high-income countries, and are largely of high quality (median score 0.82). The findings suggest that person-centred care encompasses the patient and family being respected, given complete information, involved in decision-making and supported in their physical, psychological, social and existential needs. The studies highlight the importance of involving and supporting family/friends, promoting continuation of normality and self-identity, and structuring service organisation to enable care continuity.
conclusionPerson-centred healthcare must value the social network of patients, promote quality of life and reform structurally to improve patients' experience interacting with the healthcare system. Staff must be supported to flexibly adapt skills, communication, routines or environments for individual patients. There remains a need for primary data investigating the meaning and practice of PCC in a greater diversity of diagnostic groups and settings, and a need to ground potential components of PCC within broader universal values and ethical theory.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.