Evidence map›Paper›PMID 33302783›Full record

SynthesisPalliative medicine2021

Real-world ethics in palliative care: A systematic review of the ethical challenges reported by specialist palliative care practitioners in their clinical practice.

Guy Schofield, Mariana Dittborn, Richard Huxtable, Emer Brangan, Lucy Ellen Selman

Abstract readSystematic Review
In one paragraph

Synthesis in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
33citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

33 citing papers in PubMed, 4 syntheses or guidelines pooled it.

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  2. What Is a Good Death in South Asia? A Systematic Review and Narrative Synthesis.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Guy SchofieldCentre for Ethics in Medicine, Bristol Medical School, University of Bristol, Bristol, UK.ORCID 0000-0002-9055-292X
Mariana DittbornPaediatric Bioethics Service, Great Ormond Street Hospital, London, UK.
Richard HuxtableCentre for Ethics in Medicine, Bristol Medical School, University of Bristol, Bristol, UK.
Emer BranganHealth and Applied Sciences, University of West England, Bristol, UK.
Lucy Ellen SelmanPopulation Health Sciences, Bristol Medical School, University of Bristol, UK.ORCID 0000-0001-5747-2699

Funding

Department of HealthWellcome Trust 208129/Z/17/Z
6 · The paper itself

Abstract

backgroundEthical issues arise daily in the delivery of palliative care. Despite much (largely theoretical) literature, evidence from specialist palliative care practitioners about day-to-day ethical challenges has not previously been synthesised. This evidence is crucial to inform education and adequately support staff.

aimTo synthesise the evidence regarding the ethical challenges which specialist palliative care practitioners encounter during clinical practice.

designSystematic review with narrative synthesis (PROSPERO registration CRD42018105365). Quality was dual-assessed using the Mixed-Methods Appraisal Tool. Tabulation, textural description, concept mapping and thematic synthesis were used to develop and present the narrative. DATA SOURCES: Seven databases (MEDLINE, Philosopher's Index, EMBASE, PsycINFO, LILACS, Web of Science and CINAHL) were searched from inception to December 2019 without language limits. Eligible papers reported original research using inductive methods to describe practitioner-reported ethical challenges.

resultsA total of 8074 records were screened. Thirteen studies from nine countries were included. Challenges were organised into six themes: application of ethical principles; delivering clinical care; working with families; engaging with institutional structures and values; navigating societal values and expectations; philosophy of palliative care. Challenges related to specific scenarios/contexts rather than the application of general ethical principles, and occurred at all levels (bedside, institution, society, policy).

conclusionPalliative care practitioners encounter a broad range of contextual ethical challenges, many of which are not represented in palliative care ethics training resources, for example, navigating institutional policies, resource allocation and inter-professional conflict. Findings have implications for supporting ethical practice and training practitioners. The lack of low- and middle- income country data needs addressing.

Indexed as

Hospice and Palliative Care NursingPalliative CareDelivery of Health CareHumansbioethicsclinical ethicsempirical bioethicsEthical challengespalliative caresystematic review

Identifiers

PMID33302783
PMCPMC7897798

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.