Evidence map›Paper›PMID 33299965›Full record

ArticleHRB open research2020

Rare Disease Research Partnership (RAinDRoP): a collaborative approach to identify research priorities for rare diseases in Ireland.

Suja Somanadhan, Emma Nicholson, Emma Dorris, Aoife Brinkley, Avril Kennan, Eileen Treacy, Awan Atif, Sean Ennis, Vicky McGrath, Derick Mitchell and 9 more

Open access · goldAbstract read
In one paragraph

Article in HRB open research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
1.3field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 9 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors at 7 institutions in 2 countries.

Suja SomanadhanUCD School of Nursing, Midwifery and Health Systems, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.ORCID https://orcid.org/0000-0002-0590-0126
Emma NicholsonUCD School of Nursing, Midwifery and Health Systems, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.ORCID https://orcid.org/0000-0002-6652-2552
Emma DorrisUCD School of Medicine, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.ORCID https://orcid.org/0000-0003-2014-934X
Aoife BrinkleyChildren's Health Ireland (CHI) Ireland, Children's Health Ireland (CHI) at Connolly, Blanchardstown, Dublin, D01 YC67, Ireland.
Avril KennanHealth Research Charities Ireland / HRCI, 12 Camden Row, Dublin, D08 R9CN, Ireland.ORCID https://orcid.org/0000-0003-1304-9551
Eileen TreacyUCD School of Medicine, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.ORCID https://orcid.org/0000-0002-6226-1615
Awan AtifChildren's Health Ireland (CHI) at Temple Street, Temple Street, Dublin, D01 YC67, Ireland.ORCID https://orcid.org/0000-0002-1615-2602
Sean EnnisUCD School of Medicine, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.ORCID https://orcid.org/0000-0002-4330-1386
Vicky McGrathRare Diseases Ireland, Dublin, Ireland.
Derick MitchellIPPOSI - The Irish Platform for Patient Organisations, Science and Industry, Dublin 2, Dublin, D02 XE80, Ireland.
Grace O'SullivanNational Clinical Programme for Rare Diseases, Royal College of Physicians of Ireland, Dublin-2, Ireland.
Julie PowerNIRDP- Northern Ireland Rare Disease Partnership, 2 William Street, Northern Ireland, BT23 4AH, UK.
Anne Lawlor22Q11 Ireland, North Brunswick Street, Dublin, Ireland.
Paul HarkinUCD School of Medicine, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.ORCID https://orcid.org/0000-0002-6344-4499
Sally Ann LynchUCD School of Medicine, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.
Philip WattRare Disease Task force, CF House, 24 Lower Rathmines Road, Dublin 6, Ireland.
Avril DalyEuropean Organisation for Rare Diseases (EURODIS), Paris, 75014, France.
Susie DonnellyUCD School of Nursing, Midwifery and Health Systems, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.ORCID https://orcid.org/0000-0002-0352-3232
Thilo KrollUCD School of Nursing, Midwifery and Health Systems, University College Dublin, Belfield, County Dublin, D04 V1W8, Ireland.ORCID https://orcid.org/0000-0003-2082-5117
University College Dublin · IE22q11 Ireland · IEChildren's Health Ireland at Crumlin · IEEuropean Organisation for Rare Diseases · FRHealth Research Board · IERoyal College of Physicians of Ireland · IETemple Street Children's University Hospital · IE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

life-courseparticipatoryPPIRare Diseaseresearch prioritisation

Identifiers

PMID33299965
PMCPMC7702160
OpenAlexW3016796714

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.