Evidence map›Paper›PMID 33298811›Full record

ArticleJournal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases2022

Preferred Strategies for Delivering Health Information to Patients With Musculoskeletal Disorders: A Qualitative Study.

Maria A Lopez-Olivo, Jude K A des Bordes, Maria Jibaja-Weiss, Robert J Volk, Maria E Suarez-Almazor

Registry-linked trialOpen access · greenAbstract read
In one paragraph

Article in Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01698762 (IADAPT-Third Phase), which is not on this map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
0.3field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01698762 completednot on this map

IADAPT-Third Phase

TypeobservationalSponsorM.D. Anderson Cancer CenterRan2013 to 2021Enrolled676ConditionsMusculoskeletal DiseasesArmsMultimedia Patient Decision Aids (MM-PtDAs), Comparative Effectiveness Research Summary Guide (CERSG), Questionnaires
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it, 4 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Maria A Lopez-OlivoFrom the Department of Health Services Research, The University of Texas MD Anderson Cancer Center.
Jude K A des BordesDepartment of Family and Community Medicine, The University of Texas McGovern Medical School.
Maria Jibaja-WeissDan L. Duncan Comprehensive Cancer Center, Baylor College of Medicine.
Robert J VolkFrom the Department of Health Services Research, The University of Texas MD Anderson Cancer Center.
Maria E Suarez-Almazor
The University of Texas MD Anderson Cancer Center · USBaylor College of Medicine · US

Funding

AHRQ HHS R18 HS019354
6 · The paper itself

Abstract

backgroundPatients' information needs may differ from what their care providers may perceive to be the patients' needs. This discordance needs to be recognized and addressed.

objectiveWe conducted a qualitative study to explore the perceptions of patients with selected musculoskeletal disorders and those of rheumatologists, on their preferred strategies for delivery of disease management information.

methodsFifty-two patients diagnosed with either rheumatoid arthritis, knee osteoarthritis, or osteoporosis took part in 6 focus groups and 18 individual semistructured interviews. In addition, 11 rheumatologists participated in 2 focus groups and 4 semistructured individual interviews. Data were explored by thematic content analysis. Perceived preferences were identified and compared between patients and rheumatologists regarding (a) media, (b) setting, (c) messengers, and (d) key message content.

resultsPatients' preferred media for disease management information were electronic (television and videos delivered as digital optical discs or the Internet), group instruction, and printed material. Patients preferred the information to be delivered in the setting of their homes, doctor's offices, or clinic waiting areas by the rheumatologists and patients with disease experience, addressing healthy lifestyle changes, medication adherence, and consequences of noncompliance. For rheumatologists, the perceived preference for information delivery was through printed material (brochures, booklets, and pamphlets) delivered in waiting areas by nurses and physicians, addressing nature of the disease, complications, and treatment adverse effects.

conclusionsProvider perspectives on strategies for education may differ from those of patients. Our findings highlight the need for considering different stakeholder perspectives in designing educational tools and decision support materials for patients with chronic diseases. TAKEHOME MESSAGE: Rheumatologists' preferences on strategies for education (mode of delivery, delivery setting, messengers, and topics) differ from those of patients. For example, patients want to learn about lifestyle changes and consequences of compliance versus noncompliance, whereas rheumatologists considered more important for patients to understand their disease, treatment adverse effects, and consequences of noncompliance.

Indexed as

Arthritis, RheumatoidMusculoskeletal DiseasesHumansMedication AdherenceQualitative ResearchRheumatologists

Identifiers

PMID33298811
PMCPMC12857434
OpenAlexW3111715653

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.