ArticleNeuropsychiatric disease and treatment2020
Impact of Supporting People with Advanced Parkinson's Disease on Carer's Quality of Life and Burden.
Article in Neuropsychiatric disease and treatment, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 10 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
10 citing papers in PubMed, 13 citations in OpenAlex.
- Initiating levodopa pump therapy: a qualitative study of patient and caregiver perspectives.BMC nursing · 2026Article
- Caregiver burden in Parkinson's disease: a nationwide observational survey.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2025Observational
- Caregiver Burden in Parkinson Disease: A Scoping Review of the Literature from 2017-2022.Journal of geriatric psychiatry and neurology · 2024Article
- Predictors of Burden in Carers of Patients with Impulse Control Behaviors in Parkinson's Disease.Movement disorders clinical practice · 2023Article
- Impact of Parkinson's Disease on Caregiver Quality of Life in Japan.Movement disorders clinical practice · 2023Article
- Impact of advanced Parkinson's disease on caregivers: an international real-world study.Journal of neurology · 2023Article
- Increased Serum S100β Concentration is Associated with Depression in Parkinson's Disease.Neuropsychiatric disease and treatment · 2023Article
- Personalized Care in Late-Stage Parkinson's Disease: Challenges and Opportunities.Journal of personalized medicine · 2022Review
- Relationship Satisfaction in People with Parkinson's Disease and Their Caregivers: A Cross-Sectional Observational Study.Brain sciences · 2021Article
- Caregiver Burden in Parkinson's Disease Patients Post-Deep Brain Stimulation: A Neglected Aspect.Annals of Indian Academy of NeurologyArticle
Corrections and comments
- Erratum issued
Authors and funding
15 authors at 10 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe aim of this study was to assess the burden and the quality of life (QoL) perceived by caregivers assisting advanced Parkinson's disease (PD) patients. PATIENTS AND
methodsConsecutive advanced PD patients treated with levodopa/carbidopa intestinal gel (LCIG) or continuous subcutaneous apomorphine infusion (CSAI) or care as usual (CU) and their care partners were recruited during routine visits according to a cross-sectional design. Caregiver's distress was assessed by Zarit Burden Interview (ZBI) and a QoL survey to evaluate and understand the burden experienced by care partners during family and working activities.
resultsA total of 126 patients (53 LCIG, 19 CSAI and 54 CU) and their care partners were enrolled. The ZBI score boxplot showed that LCIG and CU populations have a similar distribution (ZBI inter-quartile range [IQR] values respectively 18-42 for LCIG and 19-43 for CU group), while the CSAI group has a wider score range (IQR 16-52). Caregivers assisting patients in treatment with LCIG have more time to perform family or household duties (p=0.0022), or to engage in leisure activities (p=0.0073) compared to CU, while no difference was found when compared to CSAI group. Approximately 50% of the care partners showed mood changes in the last 6 months and LCIG and CSAI had less impact on caregiver's mood compared to CU. Patients treated with LCIG were more independent in taking a bath or shower without assistance and were more able to move and walk without assistance.
conclusionCare partners of advanced PD patients treated with device-aided therapies have more time for their own life and a better perception of their QoL with a tendency to an improvement of mood compared with those of patients treated with CU.
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