ArticleResearch involvement and engagement2020
Recommendations from a James Lind Alliance priority setting partnership - a qualitative interview study.
Article in Research involvement and engagement, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Comparing international dementia research priorities-Systematic review.International journal of geriatric psychiatry · 2022Pooled it
- Women's Cardiovascular Health and Cardiac Rehabilitation: a Priority-setting Partnership.CJC open · 2026Article
- Identifying and selecting outcome measures for the children and families domestic abuse core outcome set.Frontiers in sociology · 2026Article
- Establishing priorities in child health: Giving parents and youth a voice.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- The academic impact of paediatric research agendas: a descriptive analysis.Research involvement and engagement · 2024Article
- Overarching Priorities for Health and Care Research in the United Kingdom: A Coproduced Synthesis of James Lind Alliance 'Top 10s'.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- How should multiple myeloma research change in a patient-oriented world? Findings and lessons from the pan-Canadian myeloma priority setting partnership.Research involvement and engagement · 2023Article
- Involving children and young people in paediatric research priority setting: a narrative review.BMJ paediatrics open · 2022Review
- Child and family-focused interventions for child maltreatment and domestic abuse: development of core outcome sets.BMJ open · 2022Article
- Establishing a multistakeholder research agenda: lessons learned from a James Lind Alliance Partnership.BMJ open · 2022Review
- Research agenda setting with children with juvenile idiopathic arthritis: Lessons learned.Child: care, health and development · 2022Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe James Lind Alliance (JLA) offers a method for research priority setting with patients, clinicians and carers. The method is increasingly used but publications primarily discuss the outcome of such projects, rather than reflecting on the JLA method itself. Scrutiny of the method is crucial in order to understand and correctly interpret its outcomes.
methodsWe conducted a qualitative interview study with people involved in a JLA project into Juvenile Idiopathic Arthritis (JIA) (n = 30) to better understand the mechanisms, procedures and decisional processes during such a project and to formulate recommendations for those who consider starting a JLA project in the future.
resultsFour main themes were identified: 1) motivations, goals and expectations 2) inclusivity, roles and representation 3) procedures and decision-making 4) outcomes and future steps.
conclusionWhile the top 10 of 'evidence uncertainties' seems to take the centre stage in JLA projects, the ways in which these priorities are determined may be influenced by 'process uncertainties'. We have formulated ten specific recommendations for future JLA projects. Reflection on and reporting of these process uncertainties would contribute to the improvement of JLA projects and increase the validity of the outcome of such projects.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.