Evidence map›Paper›PMID 33292694›Full record

ArticleBMC nutrition2020

Experiences of managing a gluten-free diet on multiple levels of society: a qualitative study.

Lisa Garnweidner-Holme, Karla Sende, Monica Hellmann, Christine Henriksen, Knut E A Lundin, Mari C W Myhrstad, Vibeke H Telle-Hansen

Open access · goldAbstract read
In one paragraph

Article in BMC nutrition, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
1.1field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it, 14 citations in OpenAlex.

  1. A Meta-Synthesis Exploring Daily Experiences of Adults With Coeliac Disease in Adhering to a Gluten-Free Diet.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2025
    Pooled it
  2. Article
  3. 'It's not just about food': Living with celiac disease as a woman.International journal for equity in health · 2026
    Article
  4. Review
  5. The psychosocial experiences of adults diagnosed with coeliac disease: a qualitative evidence synthesis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Review
  6. Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 2 countries.

Lisa Garnweidner-HolmeDepartment of Nursing and Health Promotion, Faculty of Health Sciences, P.O. 4, St. Olavs Plass, 0130 Oslo Metropolitan University, Oslo, Norway. lgarnwei@oslomet.no.ORCID http://orcid.org/0000-0002-2760-9292
Karla SendeDepartment of Nursing and Health Promotion, Faculty of Health Sciences, P.O. 4, St. Olavs Plass, 0130 Oslo Metropolitan University, Oslo, Norway.
Monica HellmannDet Glutenfrie Verkstedet, Nordseterveien 26A, 1176, Oslo, Norway.
Christine HenriksenDepartment of Nutrition, Institute of Basic Medical Sciences, University of Oslo, Boks 1072 Blindern, 0316, Oslo, Norway.
Knut E A LundinK. G. Jebsen Coeliac Disease Research Centre, University of Oslo, Boks 1072 Blindern, 0316, Oslo, Norway.
Mari C W MyhrstadDepartment of Nursing and Health Promotion, Faculty of Health Sciences, P.O. 4, St. Olavs Plass, 0130 Oslo Metropolitan University, Oslo, Norway.
Vibeke H Telle-HansenDepartment of Nursing and Health Promotion, Faculty of Health Sciences, P.O. 4, St. Olavs Plass, 0130 Oslo Metropolitan University, Oslo, Norway.
OsloMet – Oslo Metropolitan University · NODNV (Norway) · NOOslo University Hospital · NOUniversity of Oslo · NO

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCoeliac disease (CD) is an immune-mediated enteropathy against dietary gluten. The treatment for CD is a strict life-long gluten-free (GF) diet, which has a profound effect on a person's life. In recent years, there has been an increase in the availability of gluten-free products. This study investigates how people with CD experience and manage a GF diet.

methodsSemi-structured, individual interviews were conducted in different areas of Norway. The analysis was guided by Interpretative Phenomenological Analysis. Participants with CD (n = 12) varied in terms of gender, age, family composition and time since diagnosed.

resultsThe analysis revealed challenges for a GF diet at the individual, interpersonal, community and policy levels. At the individual level, the participants explained that it took time to gain knowledge about a GF diet, and they expressed uncertainty about the healthiness of a GF diet. At the interpersonal level, the feeling of being different and the fear of gluten contamination were barriers to the enjoyment of social meals. At the community level, the participants asked for a wider selection of tastier GF products to purchase and increased knowledge about CD among those who prepare and sell GF foods. At the policy level, the participants asked for political action to make GF products more affordable.

conclusionsThis study indicates that people with CD should be given information about how to manage a GF diet right after being diagnosed with CD. The food industry should be encouraged to produce healthy and tasty GF products.

Indexed as

Coeliac diseaseGluten-free dietInterpretative phenomenological analysisQualitativeSocio-ecological model

Identifiers

PMID33292694
PMCPMC7682064
OpenAlexW3107351244

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.