Evidence map›Paper›PMID 33292214›Full record

ArticleBMC palliative care2020

Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional study.

Zati Sabrina Ahmad Zubaidi, Farnaza Ariffin, Cindy Teoh Cy Oun, Diana Katiman

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMC palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05357391 (Clinical Study of Pressure Injury Wound Prediction Model Using a Mobile Application System for Caring and Managing), which is not on this map. Cited by 54 papers.

0numbers the graph read from it
0cells of the map it votes in
54citing papers in PubMed
9.7field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05357391 naunknown statusnot on this mapstarted 2022, after this paper: background citation

Clinical Study of Pressure Injury Wound Prediction Model Using a Mobile Application System for Caring and Managing

TypeinterventionalSponsorNational Taiwan University Hospital Hsin-Chu BranchRan2022 to 2023Enrolled160ConditionsPressure Injury, WoundArmsThe Pressure Injury Prediction and Education model using a mobile application system
3 · Its place in the literature

Who cites it

54 citing papers in PubMed, 114 citations in OpenAlex.

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  13. Psychological distress, quality of life, needs, and resources among informal caregivers in specialist palliative home care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
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  20. Burden of Informal Caregivers from an HHC Military Hospital in Riyadh, Saudi Arabia: A Cross-Sectional Study.International journal of environmental research and public health · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Zati Sabrina Ahmad ZubaidiClinical lecturer and Family Medicine Specialist, Department of Primary Care Medicine, Faculty of Medicine, Universiti Teknologi MARA (UiTM) Selayang campus, Jalan Prima 7, 68100, Batu Caves, Selangor, Malaysia. zsabrina84@gmail.com.ORCID http://orcid.org/0000-0003-3307-5060
Farnaza AriffinClinical lecturer and Family Medicine Specialist, Department of Primary Care Medicine, Faculty of Medicine, Universiti Teknologi MARA (UiTM) Selayang campus, Jalan Prima 7, 68100, Batu Caves, Selangor, Malaysia.
Cindy Teoh Cy OunPalliative Medicine Physician, Palliative Care Unit, Selayang Hospital, 68100, Batu Caves, Selangor, Malaysia.
Diana KatimanClinical lecturer and Palliative Medicine Physician, Department of Medicine, Faculty of Medicine, Universiti Teknologi MARA (UiTM) Sg Buloh campus, Jalan Hospital, 47000, Sungai Buloh, Selangor, Malaysia.
Universiti Teknologi MARA · MYHospital Selayang · MYHospital Sungai Buloh · MY

Funding

Ministry of Higher Education Malaysia RACER/1/2019/SKK01/UITM//1
6 · The paper itself

Abstract

backgroundInformal caregivers (IC) are often overshadowed by the attention required by the terminally ill. This study aims to reveal the estimated proportion of caregiver burden, psychological manifestations and factors associated with caregiver burden among IC in the largest specialized Palliative Care Unit (PCU) in Malaysia.

methodsThis was a cross-sectional study involving IC attending a PCU. Caregiver burden and psychological manifestations were measured using previously translated and validated Zarit Burden Interview and DASS-21 questionnaires respectively. Two hundred forty-nine samples were selected for analysis.

resultThe mean ZBI score was 23.33 ± 13.7. About half of the population 118(47.4%) was found to experienced caregiver burden whereby majority have mild to moderate burden 90(36.1%). The most common psychological manifestation among IC is anxiety 74(29.7%) followed by depression 51(20.4%) and stress 46(18.5%). Multiple logistic regression demonstrated that women who are IC to patients with non-malignancy were less likely to experience caregiver burden. IC who were highly educated and spent more than 14 h per day caregiving were at least twice likely to experience caregiver burden. Finally, those with symptoms of depression and anxiety were three times more likely to suffer from caregiver burden.

conclusionCaregiver burden among IC to palliative patients is prevalent in this population. IC who are men, educated, caregiving for patients with malignancy, long hours of caregiving and have symptoms of depression and anxiety are at risk of developing caregiver burden. Targeted screening should be implemented and IC well-being should be given more emphasis in local policies.

Indexed as

Adaptation, PsychologicalAdultAgedCaregiver BurdenCross-Sectional StudiesFemaleHumansMalaysiaMaleMiddle AgedPalliative CarePatient CarePatients' RoomsSurveys and QuestionnairesBurdenCaregiverPalliative

Identifiers

PMID33292214
PMCPMC7722979
OpenAlexW3112777572

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.