ArticlePatient education and counseling2021
Challenges and approaches to involving family caregivers in primary care.
Article in Patient education and counseling, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers.
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Who cites it
33 citing papers in PubMed.
- The pain identification and communication toolkit: a training program to support family caregivers of persons with ADRD.BMC geriatrics · 2025Trial
- A Pilot Trial Evaluating Collaborative Healthcare Encounters With Caregivers: A Checklist-Based Intervention for Primary Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Trial
- When informal caregivers become double victims: Development of a multilevel conceptual framework for safer home care.International journal of nursing studies advances · 2026Review
- Primary Care Quality and Revisit Intention Among Hong Kong Older Adults: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2026Article
- A qualitative study on treatment decision-making experiences of primary caregivers of children with difficult-to-treat nephrotic syndrome.International urology and nephrology · 2026Article
- Improving Cancer Communication: Coping-Related Communication Needs and Preferences Among Spanish-Speaking Patients and Caregivers.Journal of racial and ethnic health disparities · 2026Article
- Understanding the Dementia Care Triad: Findings From a Longitudinal Qualitative Study With People Living With Dementia, Their Carers, and Their Healthcare Professionals.Dementia (London, England) · 2026Article
- Empowering Patients: The Role of Shared Treatment Decision-Making in Advanced Bladder Cancer-A Podcast.Advances in therapy · 2026Article
- "Because this is my body": patients', families' and health professionals' perspectives on family-oriented informed consent in China.BMC medical ethics · 2026Article
- Evaluating the role of visit audio recordings in triadic dementia care: study protocol.BMC geriatrics · 2025Article
- Article
- Family Caregivers' Experiences With Follow-Up Healthcare for Frontotemporal Dementia: A Narrative Inquiry.Scandinavian journal of caring sciences · 2025Article
- Specialist Practices for Managing Persons Living with Dementia and Urinary Incontinence.International urogynecology journal · 2025Article
- Triadic Primary Care Encounters Managing Medications Among Individuals With Mild Cognitive Impairment and Dementia: Patient, Caregiver, and Clinician Perspectives.The Gerontologist · 2025Article
- The Association Between Caregiving Burden, the Caregiving Relationship, and Caregiver Health.Journal of gerontological nursing · 2025Article
- A Multisite Demonstration of Shared Access to Older Adults' Patient Portals.JAMA network open · 2025Article
- Care Partner Perspectives on the Use of a Patient Portal Intervention to Promote Care Partner Identification in Dementia Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Measuring person-centered integrated care for people living with mild to moderate chronic kidney disease and multimorbidity: a cross-sectional survey.Frontiers in health services · 2025Article
- Perceived problems of parents of adolescents with cancer: A qualitative study.Journal of education and health promotion · 2025Article
- Lived experiences of older adults within an integrated hospital-at-home service: an interpretive phenomenological analysis.BMC nursing · 2024Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectiveOlder adults are commonly accompanied to routine medical visits. This study identifies challenges and explores approaches to managing patient-family interactions in primary care.
methodsSemi-structured interviews were conducted with primary care clinicians and staff (N = 30) as well as older adult patients and family caregivers (N = 40). Interviews were analyzed using content analysis.
resultsThree major challenges to patient-family interactions were identified: navigating patient autonomy and family motivation to participate; adjudicating patient-family disagreements; and minimizing obtrusive behaviors by caregivers. Three approaches to managing patient-family interactions were identified. Collaborating involved non-judgmental listening, consensus-building, and validation of different perspectives. Dividing involved separating the patient and family member to elicit confidential information from one member of the dyad. Focusing involved re-directing the conversation to either the patient or family member while minimizing input from the other. Approaches varied by patients' cognitive status and overall health condition. In general, patients and caregivers expressed the most positive attitudes toward collaborating and patient-directed focusing approaches.
conclusionPrimary care clinicians use varied approaches to managing their interactions with patient-family dyads. Patients and caregivers generally prefer those approaches that involve collaborative rather than individual discussions. PRACTICE IMPLICATIONS: Findings suggest the potential for the development of communication-focused interventions to promote positive clinician-patient-family interactions.
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