ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Adolescents and young adults' (AYA) views on their cancer knowledge prior to diagnosis: Findings from a qualitative study involving AYA receiving cancer care.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it, 13 citations in OpenAlex.
- Exercise to Manage Fatigue During and After Chemotherapy in Adolescents and Young Adults With Cancer: A Systematic Review and Meta-Analysis.Oncology nursing forum · 2025Pooled it
- Online Interventions to Improve Mental Health of Pediatric, Adolescent, and Young Adult Cancer Survivors: A Systematic Review and Meta-Analysis.Frontiers in psychiatry · 2021Pooled it
- "Struck down by cancer with no old life to fall back on" a clinical study of illness experiences among Norwegian adolescent and young adult cancer survivors investigating the ethical implications of their illness narratives.Cancer reports (Hoboken, N.J.) · 2023Trial
- "I never thought to bring them up to the doctor": examining symptom appraisal, help-seeking behaviors, and diagnostic delays among young adults with cancer.Cancer causes & control : CCC · 2026Article
- Diagnostic Intervals in Children, Adolescents and Young Adults with Primary Bone Sarcoma: A Systematic Review.Cancers · 2026Review
- Incidence, mortality, and cumulative risk of cancer in adolescents and young adults in Switzerland.European journal of epidemiology · 2026Article
- Adolescent childhood cancer survivors talking about cancer: A socioecological perspective.Asia-Pacific journal of oncology nursing · 2025Article
- Awareness and Attitudes of University Students in Bangladesh Toward Cancer: Cross-Sectional Study.JMIR formative research · 2025Article
- Facing life-threat during youth: a qualitative study on challenges, coping, and needs among adolescents and young adults with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Development of thePEC innovation · 2023Article
- Knowledge of common cancers among new-entry health science students in Japan and Vietnam.BMC medical education · 2023Article
- The Transformation of Adolescent and Young Adult Oncological and Supportive Care in Canada: A Mixed Methods Study.Current oncology (Toronto, Ont.) · 2022Article
- Adolescents and young adults' (AYA) views on their cancer knowledge prior to diagnosis: Findings from a qualitative study involving AYA receiving cancer care.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Golden Code Strategy: A Retrospective Study Evaluating the Implementation of a Direct Referral Pathway in Children and Adolescents With Suspected Cancer in a Middle-Income Country.Cancer control : journal of the Moffitt Cancer CenterObservational
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCancer is rare amongst adolescents and young adults (AYA). Previous research has reported (healthy) AYA's knowledge of risk factors and symptoms as limited, with this potentially leading to delays in help-seeking and diagnosis.
objectivesWe explored AYA's views on their cancer knowledge prior to diagnosis and if/how they perceived this as having affected their experiences of diagnosis and care.
methodsWe interviewed 18 AYA diagnosed with cancer (aged 16-24 years). Interviews were recorded and transcribed verbatim. We undertook qualitative descriptive analysis, exploring both a priori topics and emergent themes, including cancer knowledge prior to diagnosis.
resultsAdolescents and young adults characterized their knowledge of cancer and treatment prior to diagnosis and treatment initiation as limited and superficial. AYA perceived gaps in their knowledge as having profound consequences throughout their cancer journey. These included: hindering recognition of symptoms, thereby delaying help-seeking; impeding understanding of the significance of tests and referrals; amplifying uncertainty on diagnosis; and affording poor preparation for the harsh realities of treatment.
conclusionsAdolescents and young adults perceived their limited cancer knowledge prior to diagnosis as affecting experiences of diagnosis and initial/front-line care. These findings prompt consideration of whether, when and how, AYA's knowledge of cancer might be improved. Two broad approaches are discussed: universal education on AYA cancer and/or health; and targeted education (enhanced information and counselling) at and after diagnosis. PATIENT OR PUBLIC CONTRIBUTION: Our work was informed throughout by discussions with an advisory group, whose membership included AYA treated for cancer.
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Registered trials
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