ArticleThe Journal of cardiovascular nursing
Health-Related Quality of Life Declines Over 3 Years for Congenital Heart Disease Survivors.
Article in The Journal of cardiovascular nursing. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed.
- Prioritizing Neurocognitive and Psychosocial Outcomes in Adults With Congenital Heart Disease: A Consensus Statement From the Adults With Congenital Heart Disease/Neuro 2024 Conference.Journal of the American Heart Association · 2026Article
- Health-Related Quality of Life and Internalising Symptoms in Romanian Children with Congenital Cardiac Malformations: A Single-Centre Cross-Sectional Analysis.Healthcare (Basel, Switzerland) · 2025Article
- Age moderates change in disease-related stress among congenital heart disease survivors: a 6-year follow-up.European journal of cardiovascular nursing · 2024Article
- Psychometric evaluation of the traditional chinese version of PedsQLHealth and quality of life outcomes · 2023Article
- Quality of life in adult patients with congenital heart disease: Results of a double-center study.Frontiers in psychiatry · 2022Article
- Implications of Cardiac Scarring on Body Image Disturbance Among Young Adults With Congenital Heart Defects.The Journal of cardiovascular nursingArticle
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Authors and funding
4 authors.
Funding
Abstract
backgroundBecause of medical advancements, many congenital heart disease (CHD) survivors are relatively symptom-free until adulthood, at which time complications may occur. Worsening health status likely drives a change in patient-reported outcomes, such as health-related quality of life (HRQoL), although change in HRQoL has not been investigated among adolescent and young adult CHD survivors.
objectiveThe aims of the current mixed cross-sectional and longitudinal study were to (1) examine changes in HRQoL over 3 years and (2) identify any demographic (age, sex, estimated family income, and distance from medical center) and medical predictors (functional status and number of cardiac-related medications) of that change.
methodsBaseline and 3-year follow-up data were obtained via an online survey of 172 CHD survivors (15-39 years old at baseline; 25% simple, 45% moderate, 30% complex) recruited from a pediatric hospital and an adult hospital. Medical predictors were abstracted from electronic medical records.
resultsAfter controlling for New York Heart Association functional class, mixed-effects models identified significant declines in all subscales of the Research and Development Corporation 36-Item Health Survey 1.0 across the 3-year timeframe. A lower estimated family income (≤$35 000) predicted more decline in physical functioning (b = 0.5, 95% confidence interval, 0.2-0.8; P = .001) and emotional functioning (b = 0.3, 95% confidence interval, 0.1-0.5; P = .017). No other significant demographic or medical predictors were identified.
conclusionsStudy findings highlight the importance of tracking patient-reported outcomes over time, suggesting that medical staff should discuss HRQoL with CHD survivors during late adolescence and early adulthood before decline.
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