Evidence map›Paper›PMID 33272069›Full record

ArticleJournal of family nursing2021

Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation.

Marcia Van Riper, George J Knafl, Maria do Céu Barbieri-Figueiredo, Maria Caples, Hyunkyung Choi, Gert de Graaf, Elysângela Dittz Duarte, Junko Honda, Elena Marta, Supapak Phetrasuwan and 9 more

Abstract read
In one paragraph

Article in Journal of family nursing, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Marcia Van RiperUniversity of North Carolina at Chapel Hill, USA.ORCID 0000-0002-5908-9033
George J KnaflUniversity of North Carolina at Chapel Hill, USA.
Maria do Céu Barbieri-FigueiredoCenter for Health Technology and Services Research, University of Porto, Portugal.
Maria CaplesUniversity College Cork, Ireland.
Hyunkyung ChoiKyungpook National University, Daegu, South Korea.
Gert de GraafDutch Down Syndrome Foundation, Meppel, The Netherlands.ORCID 0000-0002-4990-5711
Elysângela Dittz DuarteFederal University of Minas Gerais, Belo Horizonte, Brazil.
Junko HondaUniversity of Hyogo, Akashi, Japan.
Elena MartaUniversità Cattolica del Sacro Cuore, Milan, Italy.
Supapak PhetrasuwanMahidol University, Bangkoknoi, Thailand.
Sara AlfieriUniversità Cattolica del Sacro Cuore, Milan, Italy.
Margareth AngeloUniversity of São Paulo, Brazil.
Wannee DeoisresRambhai Barni Rajabhat University, Muang, Thailand.
Louise FlemingUniversity of North Carolina at Chapel Hill, USA.
Aline Soares Dos SantosGarden Valley School Division, Winkler, Manitoba, Canada.
Maria João Rocha da SilvaUniversity of Porto, Portugal.
Beth SkeltonUniversity of North Carolina at Chapel Hill, USA.ORCID 0000-0001-9570-0904
Shelley van der VeekLeiden University, The Netherlands.
Kathleen A KnaflUniversity of North Carolina at Chapel Hill, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Down syndrome (DS) is the most common genetic cause of intellectual disability worldwide. The purpose of this analysis was to determine the internal consistency reliability of eight language versions of the Family Management Measure (FaMM) and compare family management of DS across cultures. A total of 2,740 parents of individuals with DS from 11 countries completed the FaMM. The analysis provided evidence of internal consistency reliability exceeding .70 for four of six FaMM scales for the entire sample. Across countries, there was a pattern of positive family management. Cross-cultural comparisons revealed parents from Brazil, Spain, and the United States had the most positive family management and respondents from Ireland, Italy, Japan, and Korea had the least positive. The rankings were mixed for the four remaining countries. These findings provide evidence of overall strong internal consistency reliability of the FaMM. More cross-cultural research is needed to understand how social determinants of health influence family management in families of individuals with DS.

Indexed as

Down SyndromeCross-Cultural ComparisonHumansParentsReproducibility of ResultsSurveys and QuestionnairesUnited Statescross-culturalDown syndromefamilyfamily managementmeasurementquantitative

Identifiers

PMID33272069
PMCPMC7897787

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.