ArticleActa bio-medica : Atenei Parmensis2020
The opinions and feelings about their educational needs and role of familial caregivers of Parkinson's Disease patients: a qualitative study.
Article in Acta bio-medica : Atenei Parmensis, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 2 of them syntheses that pooled it.
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Who cites it
5 citing papers in PubMed, 2 syntheses or guidelines pooled it, 7 citations in OpenAlex.
- Care partner needs in Parkinson's disease: A systematic review of qualitative and quantitative data.Journal of Parkinson's disease · 2025Pooled it
- The subjective experience of family caregivers of people living with Parkinson's disease: a meta-ethnography of qualitative literature.Aging clinical and experimental research · 2022Pooled it
- There is 'no cure for caregiving': the experience of women caring for husbands living with Parkinson's disease.International journal of qualitative studies on health and well-being · 2024Article
- Awareness of Dysphagia-Related Complications and Risks and the Importance of Early Intervention in Patients with Parkinson's Disease: A Qualitative Study.International journal of clinical practice · 2023Article
- Women Caring for Husbands Living with Parkinson's Disease: A Phenomenological Study Protocol.Journal of personalized medicine · 2022Article
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
background and aim of the workIn the advanced stages of Parkinson's Disease, patients need complex care and support, especially at home, where they often receive assistance by familial caregivers. However, caregivers may be or feel unable to cope with their role and, despite the needs of caregivers are often assessed in the literature, their opinions and feelings about these needs are not widely explored yet. This study aimed at exploring the opinions and feelings about their educational needs and role of familial caregivers of Parkinson's Disease patients.
methodsA qualitative study was conducted from October to December 2017 in a polyclinic of central Italy. Fourteen caregivers voluntarily participated in the study; semi-structured face-to-face interviews were conducted, and audio recorded until data saturation. Two investigators reviewed the transcribed notes, created Meaning Units, Sub-categories and finally the Categories with emerged themes.
resultsThe analysis of the 14 interviews generated three categories: supportiveness of healthcare educational programs; sense of inability to manage caregiver tasks; need for interaction with other familial caregivers.
conclusionsThe caregivers declared their belief that healthcare educational courses can be useful in helping them live and understand the caregiving tasks and expressed their need to share their experiences with other caregivers. In fact, they often they felt abandoned and poorly trained for the patient's management at the home. The clinical practice should allow healthcare professionals to meet the training and emotional needs of caregivers and create a trust relationship with them to make caregivers skilled in caring for patients.
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