Evidence map›Paper›PMID 33253991›Full record

ArticleSocial science & medicine (1982)2021

'Not at the diagnosis point': Dealing with contradiction in autism assessment teams.

Jennie Hayes, Rose McCabe, Tamsin Ford, Daisy Parker, Ginny Russell

Abstract read
In one paragraph

Article in Social science & medicine (1982), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Autism diagnosis as a social process.Autism : the international journal of research and practice · 2022
    Article
  6. Yonder: Autism, home visits, suicidal ideation, and young sudden cardiac death.The British journal of general practice : the journal of the Royal College of General Practitioners · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jennie HayesUniversity of Exeter, College of Medicine and Health, EX1 2LU, UK. Electronic address: Jennie.Hayes@exeter.ac.uk.
Rose McCabeSchool of Health Sciences, City, University of London, Myddelton Street Building, 1 Myddelton Street, London, EC1R 1UW, UK. Electronic address: Rose.McCabe@city.ac.uk.
Tamsin FordUniversity of Cambridge, Department of Psychiatry, Douglas House, 18b Trumpington Road, Cambridge, CB2 2AH, UK. Electronic address: tjf52@medschl.cam.ac.uk.
Daisy ParkerUniversity of Exeter, College of Medicine and Health, EX1 2LU, UK. Electronic address: d.e.parker@exeter.ac.uk.
Ginny RussellUniversity of Exeter, College of Medicine and Health, EX1 2LU, UK. Electronic address: G.Russell@exeter.ac.uk.

Funding

Medical Research Council G108/625
6 · The paper itself

Abstract

Social science literature has documented how the concept of diagnosis can be seen as an interactive process, imbued with uncertainty and contradiction, which undermines a straightforward notion of diagnosis as a way to identify underlying biological problems that cause disease. We contribute to this body of work by examining the process of resolving contradiction in autism diagnosis for adults and adolescents. Autism is a useful case study as diagnosis can be a complex and protracted process due to the heterogeneity of symptoms and the necessity to interpret behaviours that may be ambiguous. We audio-recorded and transcribed 18 specialist clinical assessment meetings in four teams in England, covering 88 cases in two adult, one child and one adolescent (14+) setting. We undertook a qualitative analysis of discursive processes and narrative case-building structure utilised by clinicians to counteract contradiction.We identified a three-part interactional pattern which allows clinicians to forward evidence for and against a diagnosis, facilitates their collaborative decision-making process and enables them to build a plausible narrative which accounts for the diagnostic decision. Pragmatism was found to operate as a strategy to help assign diagnosis within a condition which, diagnostically, is permeated by uncertainty and contradiction. Resolution of contradiction from different aspects of the assessment serves to create a narratively-coherent, intelligible clinical entity that is autism.

Indexed as

Autistic DisorderAdolescentAdultChildEnglandFamilyHumansNarrationUncertaintyAutismDiagnosisDiscourseNarrativeSociology of diagnosisUKUncertainty

Identifiers

PMID33253991
PMCPMC7814339

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.