ReviewJournal of pediatric rehabilitation medicine
Self-management and independence guidelines for the care of people with spina bifida.
Review in Journal of pediatric rehabilitation medicine. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evidence-based position paper of the UEMS PRM on the role of Physical and Rehabilitation Medicine (PRM) physician in the management of children and adults with spinal dysraphism.European journal of physical and rehabilitation medicine · 2022Pooled it
- The association of daily urinary and bowel incontinence with emotional functioning in young adults with spina bifida: an ecological momentary assessment study.Journal of rehabilitation medicine · 2026Article
- Article
- Healthcare transition in spina bifida: A national mixed method study.Health care transitions · 2026Article
- Family dynamics after diagnosis and surgical treatment of myelomeningocele: using telemedicine as a complementary tool.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2025Review
- Rehabilitation in a child with Chiari II malformation, lumbosacral meningomyelocele, achondroplasia and impaired respiratory regulation - a case report and literature review.Journal of pediatric rehabilitation medicine · 2025Review
- Tethered cord syndrome (TCS) and constipation in children: a multifaceted approach (literature review).Annals of medicine and surgery (2012) · 2025Review
- Challenges faced by staff managing learners with spina bifida in South African special schools.Health SA = SA Gesondheid · 2025Article
- Clinical profile of Korean children with spina bifida: a single-center prospective cohort study.BMC pediatrics · 2024Article
- Trajectories of self-management and independence in youth with spina bifida: Family-related predictors of growth.Research in nursing & health · 2024Article
- 2023 Canadian Urological Association/Pediatric Urologists of Canada guideline: Pediatric patients with neurogenic lower urinary tract dysfunction Full-text version.Canadian Urological Association journal = Journal de l'Association des urologues du Canada · 2023Article
- Factors affecting the transition to adulthood of Korean young adults with spina bifida: a qualitative study.BMC nursing · 2023Article
- Parent-youth interactions: Transitioning to toileting self-management in spina bifida patients.Health care transitions · 2023Article
- 2023 updates to the spina bifida transition to adult care guidelines.Journal of pediatric rehabilitation medicine · 2023Review
- [Expert consensus on diagnosis and treatment of spina bifida].Zhongguo xiu fu chong jian wai ke za zhi = Zhongguo xiufu chongjian waike zazhi = Chinese journal of reparative and reconstructive surgery · 2021Article
- Practice-changing publications: Pediatric urology - focus on treatment of spina bifida.Canadian Urological Association journal = Journal de l'Association des urologues du Canada · 2021Article
- Article
- Quality of life: Guidelines for the care of people with spina bifida.Journal of pediatric rehabilitation medicineReview
- Self-management and independence guidelines for the care of people with spina bifida.Journal of pediatric rehabilitation medicineReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Self-management and independence behaviors are associated with improved health conditions common to spina bifida such as skin integrity and bowel and bladder management. While most children with spina bifida ultimately achieve basic self-care behaviors, (e.g., dressing appropriately, planning activities with peers, or cooking pre-planned meals), they often lag 2-5 years behind their typically-developing peers in these activities [1]. Valid and reliable condition-specific assessments of self-management and independence are critical to optimizing outcomes for this population. Partnerships among parents, clinicians, and youths with spina bifida are essential to implementing tailored interventions based on these assessments. The guidelines delineated in this article are informed by current self-management research for people with spina bifida and offer recommendations to promote self-management and independence across the lifespan.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.