Evidence map›Paper›PMID 33251633›Full record

SynthesisActa paediatrica (Oslo, Norway : 1992)2021

Parental experiences of their infant's hospital admission undergoing cardiac surgery: A systematic review.

Marjorie A C P de Man, Elisabeth W Segers, Renske Schappin, Kees van der Leeden, Roelie M Wösten-van Asperen, Hans Breur, Carolina de Weerth, Agnes van den Hoogen

Open access · hybridAbstract readSystematic Review
In one paragraph

Synthesis in Acta paediatrica (Oslo, Norway : 1992), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed, 2 pooled it
3.6field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 2 syntheses or guidelines pooled it, 38 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
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  5. The health and well-being of children with medical complexity and their parents' when admitted to inpatient care units: A scoping review.Journal of child health care : for professionals working with children in the hospital and community · 2026
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  11. Wellbeing and quality of life among parents of individuals with Fontan physiology.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 1 country.

Marjorie A C P de ManWilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands.
Elisabeth W SegersWilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands.
Renske SchappinDepartment of Development and Education of Youth in Diverse Societies, Utrecht University, Utrecht, The Netherlands.
Kees van der LeedenWilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands.
Roelie M Wösten-van AsperenWilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands.
Hans BreurWilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands.
Carolina de WeerthDonders Institute for Brain, Cognition and Behaviour, Radboud University Medical Center, Nijmegen, The Netherlands.
Agnes van den HoogenWilhelmina Children's Hospital, University Medical Centre Utrecht, Utrecht, The Netherlands.ORCID 0000-0003-2032-2472
Wilhelmina Children's Hospital · NLRadboud University Nijmegen · NLUtrecht University · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimTo explore parents' experiences of parenting a child hospitalised with congenital heart disease (CHD) and undergoing surgery.

methodsFive electronic databases were systematically searched for articles describing the experiences of parents with a child with a CHD. A thematic analysis approach was used to identify the most common themes.

resultsA total of 188 articles were identified. Eight studies were included in the review. Four themes emerged, including balancing the parental role, experiencing anticipatory grief, decreasing parental stress using coping strategies and professional support.

conclusionHaving a child with CHD undergoing heart surgery is a stressful experience due to, among other things, the different situation-related parenting role during the hospital stay and feelings of anticipatory grief. Healthcare professionals in the PICU have an essential role in supporting parents and understanding the needs that are crucial for the parents in order to provide better support and reduce stress and anxiety. More qualitative research regarding the pathway from the prenatal diagnosis through the early childhood period is warranted.

Indexed as

Cardiac Surgical ProceduresParentsAdaptation, PsychologicalChildChild, PreschoolFemaleHospitalsHumansInfantParentingPregnancyQualitative Researchcongenital heart diseasepaediatricsparental experiencessystematic review

Identifiers

PMID33251633
PMCPMC8248104
OpenAlexW3108254729

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.