ArticlePalliative medicine2021
Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context.
Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed, 3 syntheses or guidelines pooled it, 76 citations in OpenAlex.
- A systematic review of the assessment model for palliative care needs in cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Implementing patient-centred outcome measures in palliative care clinical practice. An updated systematic review of facilitators and barriers.BMC palliative care · 2026Pooled it
- Needs-based triggers for timely referral to palliative care for older adults severely affected by noncancer conditions: a systematic review and narrative synthesis.BMC palliative care · 2023Pooled it
- Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial.Palliative medicine · 2023Trial
- Digital patient-reported outcome measures in palliative home care: A feasibility study.Palliative medicine · 2026Article
- Implementing palliative care in intensive care units: assessing processes using the normalisation process theory NoMAD instrument.Implementation science communications · 2026Article
- The Palliative Aged Care Outcomes Program (PACOP): establishing a national framework to improve palliative care in long-term care facilities for older people.BMC geriatrics · 2026Article
- Developing a programme theory of implementing patient-reported outcome measures for older people living with severe frailty: a mixed methods study using the consolidated framework for implementation research.Journal of patient-reported outcomes · 2025Article
- Process evaluation of a person-centred outcome measures-based quality improvement program in a hospital-based palliative care in mainland China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Patients' experiences of responding to a Patient-Reported Outcome Measure for palliative care: a mixed method study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Health professionals' and leaders' views on routine using patient-centered outcome measures in a Chinese palliative care unit: A qualitative study.Palliative & supportive care · 2025Article
- Impact of the DEDICATED approach to optimizing palliative care for people with dementia: a multi-method study.BMC health services research · 2025Article
- Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care.Palliative medicine · 2025Article
- Implementation of the e-IPOS in Home Palliative Cancer Care: A Quasiexperimental Pilot Study.The American journal of hospice & palliative care · 2025Article
- Implementation of a hospice community service redesign: Qualitative research identifying lessons learned.Palliative care and social practice · 2025Article
- A National Quality Initiative to Improve Palliative Care Outcomes: Identifying Enabling Factors that Drive Quality Improvement.Palliative medicine reports · 2025Article
- Implementation Strategies for Quality Improvement in Palliative Care: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Barriers and enablers to the implementation of patient-reported outcome and experience measures (PROMs/PREMs): protocol for an umbrella review.Systematic reviews · 2024Article
- Understanding the extent to which PROMs and PREMs used with older people with severe frailty capture their multidimensional needs: A scoping review.Palliative medicine · 2024Article
- Using normalization process theory to evaluate the use of patient-centred outcome measures in specialist palliative home care-a qualitative interview study.BMC palliative care · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite evidence demonstrating the utility of using Person-Centred Outcome Measures within palliative care settings, implementing them into routine practice is challenging. Most research has described barriers to, without explaining the causal mechanisms underpinning, implementation. Implementation theories explain how, why, and in which contexts specific relationships between barriers/enablers might improve implementation effectiveness but have rarely been used in palliative care outcomes research.
aimTo use Normalisation Process Theory to understand and explain the causal mechanisms that underpin successful implementation of Person-Centred Outcome Measures within palliative care.
designExploratory qualitative study. Data collected through semi-structured interviews and analysed using a Framework approach. SETTING/
participants63 healthcare professionals, across 11 specialist palliative care services, were purposefully sampled by role, experience, seniority, and settings (inpatient, outpatient/day therapy, home-based/community).
resultsSeven main themes were developed, representing the causal mechanisms and relationships underpinning successful implementation of outcome measures into routine practice. Themes were: Subjectivity of measures; Frequency and version of Integrated Palliative care Outcome Scale; Training, education, and peer support; Building and sustaining community engagement; Electronic system readiness; The art of communication; Reinforcing use through demonstrating value.
conclusionsRelationships influencing implementation resided at individual and organisational levels. Addressing these factors is key to driving the implementation of outcome measures into routine practice so that those using palliative care services can benefit from the systematic identification, management, and measurement of their symptoms and concerns. We provide key questions that are essential for those implementing and using outcome measures to consider in order to facilitate the integration of outcome measures into routine palliative care practice.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.