Evidence map›Paper›PMID 33249602›Full record

SynthesisJournal of advanced nursing2021

Nutrition and hydration for people living with dementia near the end of life: A qualitative systematic review.

Yolanda Barrado-Martín, Lee Hatter, Kirsten J Moore, Elizabeth L Sampson, Greta Rait, Jill Manthorpe, Christina H Smith, Pushpa Nair, Nathan Davies

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Journal of advanced nursing, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Enteral tube feeding for people with severe dementia.The Cochrane database of systematic reviews · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Yolanda Barrado-MartínCentre for Ageing & Population Studies, Research Department of Primary Care & Population Health, University College London, London, UK.ORCID https://orcid.org/0000-0002-9912-6345
Lee HatterCentre for Ageing & Population Studies, Research Department of Primary Care & Population Health, University College London, London, UK.ORCID https://orcid.org/0000-0003-2062-7225
Kirsten J MooreDivision of Psychiatry, Marie Curie Palliative Care Research Department, University College London, London, UK.ORCID https://orcid.org/0000-0002-8631-3213
Elizabeth L SampsonDivision of Psychiatry, Marie Curie Palliative Care Research Department, University College London, London, UK.ORCID https://orcid.org/0000-0001-8929-7362
Greta RaitCentre for Ageing & Population Studies, Research Department of Primary Care & Population Health, University College London, London, UK.ORCID https://orcid.org/0000-0002-7216-7294
Jill ManthorpeNIHR Policy Research Unit in Health & Social Care Workforce Research Unit, NIHR Applied Research Collaborative (ARC) South London, King's College London, London, UK.ORCID https://orcid.org/0000-0001-9006-1410
Christina H SmithLanguage and Cognition, Division of Psychology and Language Sciences, University College London, London, UK.ORCID https://orcid.org/0000-0001-7803-9616
Pushpa NairCentre for Ageing & Population Studies, Research Department of Primary Care & Population Health, University College London, London, UK.ORCID https://orcid.org/0000-0001-7326-7716
Nathan DaviesCentre for Ageing & Population Studies, Research Department of Primary Care & Population Health, University College London, London, UK.ORCID https://orcid.org/0000-0001-7757-5353

Funding

Marie Curie MCCC-FCO-11-UMarie Curie MCRGS-20171219-8004
6 · The paper itself

Abstract

aimsTo synthesize the qualitative evidence of the views and experiences of people living with dementia, family carers, and practitioners on practice related to nutrition and hydration of people living with dementia who are nearing end of life.

designSystematic review and narrative synthesis of qualitative studies. DATA SOURCES: MEDLINE, Embase, PsycINFO, CINAHL. REVIEW

methodsDatabases were searched for qualitative studies from January 2000-February 2020. Quantitative studies, or studies reporting on biological mechanisms, assessments, scales or diagnostic tools were excluded. Results were synthesized using a narrative synthesis approach with thematic analysis.

resultsTwenty studies were included; 15 explored the views of practitioners working with people living with dementia in long-term care settings or in hospitals. Four themes were developed: challenges of supporting nutrition and hydration; balancing the views of all parties involved with 'the right thing to do'; national context and sociocultural influences; and strategies to support nutrition and hydration near the end of life in dementia.

conclusionThe complexity of supporting nutrition and hydration near the end of life for someone living with dementia relates to national context, lack of knowledge, and limited planning while the person can communicate. IMPACT: This review summarizes practitioners and families' experiences and highlights the need to include people living with dementia in studies to help understand their views and preferences about nutrition and hydration near the end of life; and those of their families supporting them in the community. The review findings are relevant to multidisciplinary teams who can learn from strategies to help with nutrition and hydration decisions and support.

Indexed as

DementiaFluid TherapyNutritional SupportQuality of LifeTerminal CareAdultAgedAustraliaDeathHumansRetrospective Studiesartificial nutrition and hydrationcarersdementiaend of lifeexperiencesnursenutrition and hydrationpractitionersqualitativesystematic review

Identifiers

PMID33249602
PMCPMC7898342

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.