ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021
First steps in PROMs and PREMs collection in Wales as part of the prudent and value-based healthcare agenda.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Value-Based Integrated Care: A Systematic Literature Review.International journal of health policy and management · 2024Pooled it
- Patient-Reported-Outcome-Measures (PROMs) After Gastrointestinal Endoscopic Resections.United European gastroenterology journal · 2026Trial
- A Realist Evaluation of the Implementation and Use of Patient-Reported Outcomes in Four Value-Based Healthcare Programmes.Journal of advanced nursing · 2026Article
- Strategies to Translate PROMs to Linguistically Diverse and Lesser-Spoken Languages: Lessons from Wales.The patient · 2026Review
- Use of patient-reported experience and outcome measures within the colorectal cancer care continuum: a scoping review.Journal of cancer survivorship : research and practice · 2025Article
- Patient reported outcomes in pediatric physical therapy: a scoping review and evidence map.Journal of patient-reported outcomes · 2025Review
- Article
- A narrative review of the use of PROMs and machine learning to impact value-based clinical decision-making.BMC medical informatics and decision making · 2025Review
- Primary care occupational therapist's methods of outcome evaluation: Do they align to value-based healthcare?The British journal of occupational therapy · 2025Article
- Article
- A social return on investment analysis of patient-reported outcome measures in value-based healthcare.Journal of patient-reported outcomes · 2025Article
- Patient-Reported Experiences in Vascular Surgery: A Qualitative Analysis of Care Quality.Health services insights · 2025Article
- A new validated Lymphoedema-specific Patient Reported Outcome Measure (LYMPROM) for adults with Lymphoedema.PloS one · 2025Article
- Using patient-generated health data more efficient and effectively to facilitate the implementation of value-based healthcare in the EU - Innovation report.Computational and structural biotechnology journal · 2024Article
- Development of the First Patient-Reported Experience Measure (PREM) for Hearing Loss in Audiology Care-My Hearing PREM.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Responsiveness and minimal important change of the Family Reported Outcome Measure (FROM-16).Journal of patient-reported outcomes · 2024Article
- Implementation of value-based healthcare in ophthalmology: a scoping review.BMJ open ophthalmology · 2024Article
- Article
- A study demonstrating users' preference for the adapted-REQUITE patient-reported outcome questionnaire over PRO-CTCAEFrontiers in oncology · 2024Article
- Analysis of applying a patient safety taxonomy to patient and clinician-reported incident reports during the COVID-19 pandemic: a mixed methods study.BMC medical research methodology · 2023Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
purposePatients are experts in their own health and should be treated as equal partners in their care. Patient-reported outcome measures (PROMs) are an effective way of gathering patient feedback and can facilitate effectiveness and cost-effectiveness analysis to improve decision making and service improvement. The PROMs, PREMs & Effectiveness Programme was initiated in 2016 and aimed to develop an electronic platform to facilitate collection of PROMs and Patient-reported experience measures (PREMs) from secondary care patients across Wales.
methodsWe worked with all Health Boards in Wales, the NHS Wales Informatics Service (NWIS), and Cedar (a healthcare technology research centre) to identify and meet technical requirements to develop a platform which is fit for purpose. Patient groups were included throughout the development to gather feedback and for extensive testing. Clinical teams helped identify the most appropriate tools, with licences, translations and electronic formatting issues being managed centrally.
resultsThe developed platform is integrated with patient administration systems minimising the need for manual input, with processes in place to allow automatic collection triggers according to nationally agreed schedules. We have over 30 nationally agreed PROMs 'pathways' with over 110,000 PROMs collected to date. Responses are fed back to clinicians via the electronic patient record and to each health board via feeds to the national data warehouse, making data easily accessible to different teams, maximising use and application. DISCUSSION: The national platform has provided a co-ordinated approach to PROMs collection in Wales, offering an effective means of communicating with patients outside the traditional clinic visit.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.