ArticleJournal of pediatric psychology2021
Topical Review: Crowdsourcing as a Novel Approach to Qualitative Research.
Article in Journal of pediatric psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- Parental Perspectives on Prenatal Counseling and Communication at the Time of Initial Evaluation and Diagnosis of Congenital Heart Disease.American journal of perinatology · 2026Article
- A study protocol for co-designing risk communication strategies for hepatitis C virus (HCV) testing among priority populations in Johannesburg district, Gauteng, South Africa.Discover public health · 2026Article
- Siblings of young children with congenital heart disease: parent perspectives from a crowdsourcing study.Journal of pediatric psychology · 2026Article
- Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Loss and Grief in Parents of Children Hospitalized for Congenital Heart Disease.Hospital pediatrics · 2025Article
- Utilizing Crowdsourcing to Incorporate the Voice of the Family When Developing a Diabetes Distress Intervention.Diabetes spectrum : a publication of the American Diabetes Association · 2025Article
- Parent and adolescent perspectives on a novel transdisciplinary model of healthcare delivery for type 1 diabetes.Clinical practice in pediatric psychology · 2024Article
- Healthcare can't stop evolving: innovation as the catalyst for unleashing the managerial potential of value-based healthcare by stimulating intangible assets and enhancing organizational resilience.Frontiers in psychology · 2024Review
- Barriers and facilitators to discussing parent mental health within child health care: Perspectives of parents raising a child with congenital heart disease.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
- Remedy to Diabetes Distress (R2D2): Development protocol for a scalable screen-to-treat program for families of school-age children.Contemporary clinical trials · 2022Article
- Parental post-traumatic stress, overprotective parenting, and emotional and behavioural problems for children with critical congenital heart disease.Cardiology in the young · 2022Article
- State of the science and future research directions in palliative and end-of-life care in paediatric cardiology: a report from the Harvard Radcliffe Accelerator Workshop.Cardiology in the young · 2022Article
- A Data Envelopment Analysis Evaluation Study of Urban Crowd Sourcing Competitiveness Based on Evidence From 21 Chinese Cities.Frontiers in psychology · 2022Article
- Partnering With Stakeholders to Inform the Co-Design of a Psychosocial Intervention for Prenatally Diagnosed Congenital Heart Disease.Journal of patient experience · 2022Article
- Article
- Parent mental health and family functioning following diagnosis of CHD: a research agenda and recommendations from the Cardiac Neurodevelopmental Outcome Collaborative.Cardiology in the young · 2021Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
objectiveTo describe a novel, five-phase approach to collecting qualitative data from hard-to-reach populations using crowdsourcing methods.
methodsDrawing from experiences across recent studies with type 1 diabetes and congenital heart disease stakeholders, we describe five phases of crowdsourcing methodology, an innovative approach to conducting qualitative research within an online environment, and discuss relevant practical and ethical issues.
resultsPhases of crowdsourcing methodology are: (I) Preparing; (II) Forming Crowds; (III) Collecting Crowdsourced Data; (IV) Coding and Analyzing Crowdsourced Data; and (V) Generating and Disseminating Findings. Iterative feedback from stakeholders is obtained in all five phases. Practical and ethical issues include accessing diverse stakeholders, emotional engagement of crowd participants, responsiveness and transparency of crowdsourcing methodology, and limited personal contact with crowd participants.
conclusionsCrowdsourcing is an innovative, efficient, feasible, and timely approach to engaging hard-to-reach populations in qualitative research.
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