ArticleBMJ open2020
Psychological adaptation and recovery in youth with sarcoma: a qualitative study with practical implications for clinical care and research.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.
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Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Psychosocial Impact of Sarcoma: Challenges and Adaptation, a Meta-Synthesis.Psycho-oncology · 2026Pooled it
- Lived experiences of sexual wellbeing and psychosexual needs among adolescents and young adults with sarcoma: a qualitative study.Frontiers in psychology · 2026Article
- Survivorship Considerations and Management in the Adolescent and Young Adult Sarcoma Population: A Review.Current oncology (Toronto, Ont.) · 2025Review
- Patient-physician agreement on function and pain is associated with long-term outcomes in sarcoma: findings from a longitudinal study.Journal of cancer survivorship : research and practice · 2025Article
- Clinical characteristics of sarcoma patients: a population-based data analysis from a German clinical cancer registry.Journal of cancer research and clinical oncology · 2023Article
- Patients' perception of changes and consequences after tumor resection : A qualitative study in Austrian patients with musculoskeletal malignancies.Wiener klinische Wochenschrift · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThis study explored factors that play a role in psychological adaptation and recovery of young people with sarcoma.
designQualitative study.
settingNational Health Service hospitals in the UK.
methodsUsing purposive sampling, participants were recruited for semistructured interviews over the telephone or face to face in order to answer questions about how cancer impacted various domains of their life. Data were analysed using a framework approach.
resultsThirty participants, aged 15-39 years with primary sarcoma diagnosis provided in-depth accounts of their experience. Emerging themes from the interviews were grouped into two overarching themes that relate to one's adaptation to illness: individual level and environmental level. The qualitative nature of our study sheds light on meaningful connections between various factors and their role in one's psychological adaptation to sarcoma. We devised a visual matrix to illustrate how risk and protective factors in adaptation vary between and within individuals.
conclusionsThis study demonstrates that young people with sarcoma report an array of both positive and negative factors related to their illness experience. The route to recovery is a multifactorial process and a one-size-fits-all approach to psychosocial care proves inadequate. We propose that moving beyond the latent constructs of resilience and psychopathology towards a dynamic model of psychological adaptation and recovery in this population can result in optimisation of care. We offer some recommendations for professionals working with young people with sarcoma in clinic and research.
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