ArticleBMC health services research2020
Use of the supportive care framework to explore haematological cancer survivors' unmet needs: a qualitative study.
Article in BMC health services research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Living with or beyond lymphoma: A rapid review of the unmet needs of lymphoma survivors.Psycho-oncology · 2022Pooled it
- Concordance Between Patient-Reported and Clinically Documented Symptoms in Acute Myeloid Leukemia.Oncology nursing forum · 2026Article
- Health care utilization up to 11 years after diagnosis among patients with a hematologic malignancy and its association with socioeconomic position.Journal of cancer survivorship : research and practice · 2026Article
- The holistic model of leukaemia survivorship care: derived from a qualitative exploration of leukaemia survivorship.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Unmet Needs and Health-Related Quality of Life Among Patients With Relapsed/Refractory Indolent Non-Hodgkin Lymphoma: A Mixed-Methods Study.Psycho-oncology · 2025Article
- Article
- Quality of Life and Symptoms of Hospitalized Hematological Cancer Patients.Current oncology (Toronto, Ont.) · 2024Article
- Article
- Investigating the Impact of AI on Shared Decision-Making in Post-Kidney Transplant Care (PRIMA-AI): Protocol for a Randomized Controlled Trial.JMIR research protocols · 2024Article
- Elements for assistance to patients with hematological malignancies to propose care lines: a scoping review.Revista brasileira de enfermagem · 2023Article
- Impact on mental health, disease management, and socioeconomic modifications in hematological patients during the COVID-19 pandemic in Italy.Therapeutic advances in hematology · 2023Article
- Patient and Provider Perspectives on the Impacts of Unpredictability for Patient Sensemaking: Implications for Intervention Design.Journal of patient experience · 2022Article
- Exploring health-related quality of life among non-Hodgkin's lymphoma survivors after completion of primary treatment: a cross-sectional study in Thailand.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
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5 authors.
Funding
Abstract
backgroundSome sub-types of haematological cancers are acute and require intensive treatment soon after diagnosis. Other sub-types are chronic, relapse over many years and require life-long cycles of monitoring interspersed with bouts of treatment. This often results in significant uncertainty about the future, high levels of depression and anxiety, and reduced quality of life. Little is known about how to improve care for haematological cancer survivors. This study explored qualitatively, in a sample of haematological cancer survivors, (i) their unmet needs experienced as a result of their disease and treatment; and (ii) strategies that may help address these needs.
methodsSemi-structured interviews were conducted with 17 adult haematological cancer survivors. Data was analysed using qualitative content analysis. The Supportive Care Framework guided data collection and analysis.
resultsParticipants had a mean age of 57 years (SD 13). Most were male (n = 10, 59%). Five themes emerged from the data: (i) changes in unmet needs across the care trajectory (with greatest unmet needs experienced soon after diagnosis, at discharge from hospital and with cancer recurrence); (ii) informational unmet needs requiring improved patient-centred communication; (iii) uncertainty about treatment and the future; (iv) coordinated, tailored and documented post-treatment care planning as a strategy for optimal care delivery; and (v) ongoing support services to meet psychosocial and practical unmet needs by involving peer support, less bureaucratic transport services and flexible work arrangements.
conclusionsTo our knowledge, this is the first qualitative investigation using the Supportive Care Framework to explore unmet needs of haematological cancer survivors. Our findings offer fresh insights into this important area of study. Written, take-home care plans which provide simple but tailored guidance on where to seek additional support may help decrease uncertainty and feelings of vulnerability post-treatment for adult haematological cancer survivors. Future research should further develop and test strategies aimed at addressing unmet needs of haematological cancer survivors identified in this study.
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