ArticleAmerican journal of medical genetics. Part C, Seminars in medical genetics2021
Experiences from the epicenter: Professional impact of the COVID-19 pandemic on genetic counselors in New York.
Article in American journal of medical genetics. Part C, Seminars in medical genetics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
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The trial behind it
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Who cites it
20 citing papers in PubMed, 32 citations in OpenAlex.
- Investigating the Impact of Screen-Sharing Visual Aids during Genomic Results Disclosure via Telehealth in Diverse Families in the TeleKidSeq Pilot Study.Public health genomics · 2025Trial
- Barriers and facilitators for online genetic care for hereditary cancer in Japan: findings from surveys of both clients and medical professionals.International journal of clinical oncology · 2026Article
- Predictors of germline genetic testing referral and completion in ovarian cancer patients at a Comprehensive Cancer Center.Gynecologic oncology · 2024Article
- Patient experiences in receiving telegenetics care for inherited cardiovascular diseases.Journal of community genetics · 2024Article
- The TeleKidSeq pilot study: incorporating telehealth into clinical care of children from diverse backgrounds undergoing whole genome sequencing.Pilot and feasibility studies · 2023Article
- The use of telemedicine in cardiogenetics clinical practice during the COVID-19 pandemic.Molecular genetics & genomic medicine · 2022Article
- Factors Influencing Patient Preferences for Telehealth Cancer Genetic Counseling During the COVID-19 Pandemic.JCO oncology practice · 2022Article
- Rapid Implementation of Telegenetic Counseling in the COVID-19 and Swedish Healthcare Context: A Feasibility Study.Frontiers in health services · 2022Article
- Analysis of the reported use of practice-based competencies by North American genetic counselors during the COVID-19 pandemic.Journal of genetic counseling · 2021Article
- Genetic counseling in the time of COVID-19: The Philippine experience with telegenetics.Journal of genetic counseling · 2021Article
- Clinical genetic counselor experience in the adoption of telehealth in the United States and Canada during the COVID-19 pandemic.Journal of genetic counseling · 2021Article
- Genetic counseling research and COVID-19: A lesson in resiliency.Journal of genetic counseling · 2021Article
- The Accreditation Council for Genetic Counseling's response to COVID-19 impact on genetic counseling programs.Journal of genetic counseling · 2021Article
- The COVID-19 pandemic and reproductive genetic counseling: Changes in access and service delivery at an academic medical center in the United States.Journal of genetic counseling · 2021Article
- 'Steep learning curves' to 'Smooth Sailing': A reappraisal of telegenetics amidst the COVID-19 pandemic.Journal of genetic counseling · 2021Article
- Genetic counseling, virtual visits, and equity in the era of COVID-19 and beyond.Journal of genetic counseling · 2021Article
- Transitioning to telegenetics in the COVID-19 era: Patient satisfaction with remote genetic counseling in adult neurology.Journal of genetic counseling · 2021Article
- Genetic counselor experiences with telehealth before and after COVID-19.Journal of genetic counseling · 2021Article
- Experiences from the epicenter: Professional impact of the COVID-19 pandemic on genetic counselors in New York.American journal of medical genetics. Part C, Seminars in medical genetics · 2021Article
- Acceptability and Future Considerations for Telegenetic Counseling After the COVID Pandemic: Interviews with Genetic Counselors, Clinicians, and Patients.Inquiry : a journal of medical care organization, provision and financingArticle
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
The COVID-19 pandemic disrupted the delivery of healthcare services, including genetic counseling. This study assessed the professional impact of the pandemic on genetic counselors (GCs) and evaluated how genetics service delivery models changed in New York State (NYS). One hundred sixty-five NYS GCs participated in an anonymous survey. Clinic structure, telegenetics (video and/or telephone consultations) use and acceptability, and professional practices before and during the pandemic were compared. The most frequently reported consultation type shifted from in-person only (49%) before the pandemic to telegenetics only (39%) during. Most were satisfied with video (93.1%) and telephone (81.4%) telegenetics. Additionally, 93.5% of participants expressed a desire to continue using telegenetics after the pandemic resolves. Common obstacles included difficulties coordinating sample collection (60.2%) and obtaining written consent for testing (57.6%). Billing methods for consultations during the pandemic did not change significantly. Participants were asked about NYS's lack of licensure, which restricts billing options. Most felt that genetic counseling licensure would benefit the profession (92.6%), the public (88.5%), and their institution/company (74.5%). This study provides insight into the effects of the rapid adoption of telegenetics and can guide future discussions about best practices for its use even after the health crisis resolves.
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