ArticlePediatric blood & cancer2021
COVID-19 and children with cancer: Parents' experiences, anxieties and support needs.
Article in Pediatric blood & cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 48 papers, 2 of them syntheses that pooled it.
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Who cites it
48 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- The Global Impact of COVID-19 on Childhood Cancer Outcomes and Care Delivery - A Systematic Review.Frontiers in oncology · 2022Pooled it
- Trial
- Exploring holistic care needs in paediatric and teenage molecular radiotherapy: a parent and carer perspective.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- "It's that feeling that you can't get away": Motherhood, gender inequality and the stress process during extreme events.The British journal of social psychology · 2025Article
- The health experience of children, adolescents and their families during the COVID-19 pandemic: an exploratory qualitative study in pediatric homecare.Frontiers in pediatrics · 2025Article
- Quality of life and healthcare utilization during the COVID-19 pandemic are more restricted in chronically ill than in healthy children: a tertiary care children's hospital experience.European journal of pediatrics · 2024Article
- Psychological Experiences of Parents of Pediatric Cancer Patients during and after COVID-19 Pandemic.Cancers · 2024Article
- Caring for a child with cancer during COVID-19 pandemic: an assessment of the parents' perception and stress level.Frontiers in public health · 2024Article
- Communication in disasters to support families with children with medical complexity and special healthcare needs: a rapid scoping review.Frontiers in public health · 2024Article
- COVID-19- Experiences and support needs of children and young people with Hydrocephalus and parents in the United Kingdom.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Article
- Impact of the COVID-19 pandemic on paediatric renal tumour presentation and management, a SIOP renal tumour study group study.Cancer medicine · 2023Article
- Lack of freedom predicted poor self-reported health among family caregivers of children with disabilities during the COVID-19 pandemic in Europe.Nursing open · 2023Article
- "Did I get into the twilight zone somehow?": sexual and gender minority cancer caregiver experiences during COVID.Cancer causes & control : CCC · 2023Article
- Psychosocial impact of COVID-19 on caregivers and adolescents and young adult survivors of childhood cancer.Pediatric blood & cancer · 2023Article
- Communication transforms the impact of the COVID-19 pandemic on children with cancer and their families.Cancer medicine · 2023Article
- Risk and Resilient Functioning of Families of Children with Cancer during the COVID-19 Pandemic.International journal of environmental research and public health · 2023Article
- Evaluation of Safety Measures at a Medical Summer Camp During the SARS-CoV-2 Pandemic.Wilderness & environmental medicine · 2023Article
- The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents.Current oncology (Toronto, Ont.) · 2023Article
- No Child Should Be Left Behind by COVID-19: A Report about the COVID-19 Pandemic Experience in Children and Adolescents with Acute or Chronic Disease Treated at a Pediatric Referral Hospital in Italy.Pediatric reports · 2023Article
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Authors and funding
7 authors.
Funding
Abstract
backgroundChildren with cancer were designated as clinically extremely vulnerable if they were to contract SARS-CoV-2 due to immune suppression in the early phase of the COVID-19 pandemic. Our aim was to explore experiences, information and support needs, and decision making of parents with a child with cancer in response to this phase in the United Kingdom.
methodsParents of a child with cancer completed a survey at a time when the UK moved into a period of 'lockdown'. An online survey was developed by the research team to capture parents' experiences, information and support needs, and decision making, using closed statements and open text boxes. Descriptive quantitative analyses and qualitative thematic content analysis were undertaken.
findingsOne hundred seventy-one parents/caregivers completed the survey. Eighty-five percent were worried about the virus and they were vigilant about the virus (92%) or cancer symptoms (93.4%). For two-thirds (69.6%), hospital was no longer considered a safe place. Eight overarching themes were identified related to the virus: (a) risk of infection; (b) information, guidance and advice; (c) health care provision; (d) fears and anxieties; or related to lockdown/isolation: (e) psychological and social impact; (f) keeping safe under lockdown; (g) provisions and dependence; and (h) employment and income.
conclusionsThis is the first study, to the best of our knowledge, to report experiences of parents of a child with cancer during the SARS-CoV-2/COVID-19 pandemic. The majority of parents were worried about SARS-CoV-2 and transmitting the virus to their child. Hospital was no longer perceived to be a safe place, and parents were worried about suboptimal cancer care. Parents described fear and anxiety and the psychological, social and economic impact of isolation.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.