ArticlePsycho-oncology2021
The unmet needs of childhood cancer survivors in long-term follow-up care: A qualitative study.
Article in Psycho-oncology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 2 of them syntheses that pooled it.
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Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it, 55 citations in OpenAlex.
- Impact of Non-Pharmacological Cognitive Interventions on Real-World Daily Function in Children With Cancer: A Systematic Review.Pediatric blood & cancer · 2025Pooled it
- Survivorship Care After Childhood Cancer: A Systematic Review of Reported Barriers and Facilitators.Cancer control : journal of the Moffitt Cancer CenterPooled it
- Hearing screening beyond the clinic: Childhood cancer survivors' perspectives on a novel hearing screening program.BMC health services research · 2026Trial
- Satisfaction with follow-up consultations among Swiss childhood cancer survivors: A prospective cohort study.Preventive medicine reports · 2026Article
- Feasibility of Integrating a Standardized Psychosocial Follow-Up After Childhood Cancer-An Interim Analysis of the LE-Na Study.Cancer medicine · 2026Article
- Addressing survivorship care gaps through digital innovation: opportunities, challenges, and ethical considerations in the e-QuoL project.BMC cancer · 2025Article
- Article
- Addressing gaps and enhancing experiences in support services for families of pediatric cancer survivors.Pediatric research · 2025Article
- A Health Service Research Study on a Low-Threshold Hearing Screening Program for Childhood Cancer Survivors in Switzerland: Protocol for the HEAR Study.JMIR research protocols · 2025Article
- Review
- A prospective cohort study on the trajectory of health-related quality of life in adult childhood cancer survivors attending a follow-up care program.Scientific reports · 2025Article
- Multilevel Facilitators and Barriers to Healthcare Organization and Delivery Among Childhood Cancer Survivors.Pediatric blood & cancer · 2025Article
- Follow-up care needs and motivational factors for childhood cancer survivors and their parents in Germany.Scientific reports · 2025Article
- The challenges experienced by collegiate athlete cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Identifying concerns and needs in AYA survivors of pediatric cancer: a scoping review.Frontiers in psychology · 2025Review
- Care coordination models for transition and long-term follow-up among childhood cancer survivors: a scoping review.BMJ open · 2024Article
- Mapping the supportive care needs and quality of life of adult survivors of childhood cancer at a comprehensive cancer center in the Middle East.Scientific reports · 2024Article
- Exploring the perspective of adolescent childhood cancer survivors on follow-up care and their concerns regarding the transition process-A qualitative content analysis.Cancer medicine · 2024Article
- Article
- The role of mental health nursing in pediatric hematology/oncology - Part 2: Developing an implementation strategy for an innovative practice.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2024Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveEvidence suggests benefits of long-term follow-up care attendance for childhood cancer survivors, but studies show poor inclusion of survivorship issues and needs. While information needs of childhood cancer survivors have been addressed previously, few studies specifically investigated the supportive care needs of survivors beyond the domain of information and communication. Therefore, this qualitative study aimed to assess the unmet needs of childhood cancer survivors with regards to their long-term survivorship.
methodsChildhood Cancer Switzerland invited survivors of childhood cancer to participate in our study. We used semistructured interviews to assess survivors' experiences regarding the impact of their disease and the (un)met needs during their survivorship. Data analysis followed the principles of qualitative content analysis.
resultsInterviews were conducted with 28 childhood cancer survivors (mean age 31 years, age at diagnosis 9 years, time since end of treatment 19 years). Key themes in relation to unmet needs of survivors were (1) lacking psychosocial support, (2) lacking collaboration and decentralization of care, (3) starting from zero, and (4) need for centralized, specialized, and individualized services.
conclusionsOur findings revealed a demand for integrating psychosocial support in long-term follow-up care and a strong need for personalized, centralized, and interdisciplinary long-term follow-up care. Current established interdisciplinary clinics should be further extended to provide centralized, personalized, and evidence-based long-term follow-up care including adequate psychosocial support for all childhood cancer survivors.
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