Evidence map›Paper›PMID 33216908›Full record

ArticleThe Gerontologist2021

Attitudes of Homebound Older Adults and Their Caregivers Toward Research and Participation as Research Advisors.

Ashley L Eaton England, Christine S Ritchie, Alexandria Mickler, Carla M Perissinotto, Sarah K Garrigues, Bruce Leff, Orla C Sheehan, Krista L Harrison

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in The Gerontologist, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. A Home-Based Care Research Agenda by and for Homebound Older Adults and Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Ashley L Eaton EnglandDivision of Geriatrics, University of California, San Francisco, California, US.ORCID 0000-0001-5067-0940
Christine S RitchieThe Mongan Institute and the Division of Palliative Care and Geriatric Medicine, Massachusetts General Hospital, Boston, Massachusetts, US.ORCID 0000-0002-4881-9416
Alexandria MicklerDivision of Geriatric Medicine, Center for Transformative Geriatric Research, Johns Hopkins University School of Medicine, Baltimore, Maryland, US.
Carla M PerissinottoDivision of Geriatrics, University of California, San Francisco, California, US.
Sarah K GarriguesDivision of Geriatrics, University of California, San Francisco, California, US.
Bruce LeffDivision of Geriatric Medicine, Center for Transformative Geriatric Research, Johns Hopkins University School of Medicine, Baltimore, Maryland, US.
Orla C SheehanDivision of Geriatric Medicine, Center for Transformative Geriatric Research, Johns Hopkins University School of Medicine, Baltimore, Maryland, US.
Krista L HarrisonDivision of Geriatrics, University of California, San Francisco, California, US.

Funding

Palliative Care for People Living at Home with Advancing Dementia and Their CaregiversK01AG059831 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI HARRISON, KRISTA LYN · 2019 to 2023
$720k
NIA NIH HHS K01 AG059831NIA NIH HHS L30 AG060590
6 · The paper itself

Abstract

BACKGROUND AND

objectivesHomebound older adults and their caregivers have not historically been engaged as advisors in patient-centered outcomes research. This study aimed to understand the attitudes of homebound older adults and their caregivers toward research and participation as research advisors. RESEARCH DESIGN AND

methodsDescriptive thematic analysis of semistructured interviews conducted with 30 homebound older adults and caregivers recruited from home-based medical care practices. Interview questions addressed opinions on research and preferences for engaging as research advisors.

resultsOf 30 participants, 22 were female, 17 were people of color, and 11 had Medicaid. Two themes emerged related to perceptions of research overall: (a) utility of research and (b) relevance of research. Overall, participants reported positive attitudes toward research and felt that research could affect people like them. Three themes emerged related to participating as research advisors: (a) motivators, (b) barriers, and (c) preferences. Participants were open to engaging in a variety of activities as research advisors. Most participants were motivated by helping others. Common barriers included time constraints and caregiving responsibilities, and physical barriers for homebound individuals. Participants also reported fears such as lacking the skills or expertise to contribute as advisors. Many were willing to participate if these barriers were accommodated and shared their communication preferences. DISCUSSION AND IMPLICATIONS: Diverse homebound older adults and caregivers are willing to be engaged as research advisors and provided information to inform future engagement strategies. Findings can inform efforts to meet new age-inclusive requirements of the National Institutes of Health.

Indexed as

CaregiversHomebound PersonsAgedAttitudeCommunicationFemaleHumansQualitative ResearchSocial BehaviorHome-based medical carePatient and caregiver perspectivePatient-centered researchQualitative study

Identifiers

PMID33216908
PMCPMC8679039

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.