Evidence map›Paper›PMID 33213603›Full record

ArticlePrimary health care research & development2020

'It's like trying to ice a cake that's not been baked': a qualitative exploration of the contextual factors associated with implementing an evidence-based information intervention for family carers at the end of life.

Amy Mathieson, Karen Luker, Gunn Grande

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Article in Primary health care research & development, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

3 authors.

Amy MathiesonDepartment of Public Health, Policy and Systems, University of Liverpool, Liverpool, UK.ORCID 0000-0002-5360-3644
Karen LukerDivision of Nursing, Midwifery and Social Work, School of Health Sciences, The University of Manchester, Manchester, UK.ORCID 0000-0002-2437-2904
Gunn GrandeDivision of Nursing, Midwifery and Social Work, School of Health Sciences, The University of Manchester, Manchester, UK.ORCID 0000-0003-2200-1680

Funding

Department of Health
6 · The paper itself

Abstract

aimTo explore the introduction of an evidence-based information intervention - the 'Caring for Someone with Cancer' booklet - within home care and end-of-life care, to inform future implementation and practice development within this setting.

backgroundFamily carers' contribution is crucial to enable care and death of people at home. The 'Caring for Someone with Cancer' booklet received positive responses from family carers and District Nurses and is an evidence-based intervention designed to support carers to deliver basic nursing tasks. Further feasibility work was required to establish how it should be implemented. Little is known about how to successfully translate interventions into practice, particularly within home care settings and end-of-life care.

methodsImplementation of the 'Caring for Someone with Cancer' booklet, utilising a qualitative case study approach, in four home care sites. Semi-structured interviews, informed by Normalization Process Theory (NPT), were undertaken at implementation sites in May 2016-June 2017. Participants were generalist and specialist nurses, managers, and Healthcare Assistants (HCAs). A framework approach to analysis was adopted.

findingsForty-five members of staff participated. Failed implementation was associated with organisational-level characteristics and conditions, including workforce composition and predictability of processes. Unstable work environments meant home care providers focused on short-term rather than long-term goals, precluding practice development. Staff's perceptions of the time available to engage with and implement the intervention inhibited adoption, as many participants were "just getting through the day". Implementation was successful in sites with explicit management support, including proactive implementation attempts by managers, which legitimatised the change process, and if all staff groups were engaged. To encourage uptake of evidence-based interventions in home care settings, practitioners should be given opportunities to critically reflect upon taken-for-granted practices. Future implementation should focus on work pertaining to the NPT construct 'Collective Action', including how staff interact and build confidence in new practices.

Indexed as

Home Care ServicesTerminal CareCaregiversDeathHumansIceIceend-of-life careevidence-based interventionfamily carershome careimplementationNormalization Process Theory

Identifiers

PMID33213603
PMCPMC7681137

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.