ReviewPalliative medicine2021
The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis.
Review in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- Psychosocial interventions for families with minor children affected by parental cancer: An umbrella review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- 'I'm tired of justifying why my life has stopped': A qualitative analysis of the experiences and support needs of young people caring at the end of life and into bereavement.Palliative care and social practice · 2026Article
- Supporting the bereaved child in the adult ICU: a narrative review.Intensive care medicine · 2025Review
- Article
- Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals.Palliative medicine · 2023Article
- Strengths and Weaknesses of Children Witnessing Relatives with Amyotrophic Lateral Sclerosis.Children (Basel, Switzerland) · 2023Article
- Providing person-centered palliative care in conflict-affected populations in the Middle East: What matters to patients with advanced cancer and families including refugees?Frontiers in oncology · 2023Article
- Strategies for recruiting the dependent children of patients with a life-limiting illness as research participants.Palliative medicine · 2022Article
- Parental perspectives on the grief and support needs of children and young people bereaved during the COVID-19 pandemic: qualitative findings from a national survey.BMC palliative care · 2022Article
- Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview study.European journal of pediatrics · 2022Article
- Child Posttraumatic Stress after Parental Cancer: Associations with Individual and Family Factors.Journal of pediatric psychology · 2022Article
- 'It's not just all about the fancy words and the adults': Recommendations for practice from a qualitative interview study with children and young people with a parent with a life-limiting illness.Palliative medicine · 2022Article
- Conversations About Children When an Important Adult Is at End of Life: An Audit.The American journal of hospice & palliative care · 2022Article
- Article
- Experiences of preparing children for a death of an important adult during the COVID-19 pandemic: a mixed methods study.BMJ open · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
backgroundAlthough the death of a parent during childhood is relatively commonplace, the voices of children affected by parental life-limiting illness are under-represented in research evidence. Guidance for healthcare professionals is largely based upon professional opinion rather than the experience of children themselves.
aimTo synthesise and appraise the literature from primary research with children about their experience of having a parent with a life-limiting illness.
designIntegrative review and thematic synthesis. Registered on PROSPERO (CRD42019094581). DATA SOURCES: PsychINFO, Medline, Embase, Scopus and Web of Science were searched, supplemented by searches of grey literature and systematic reviews. There were no restrictions on publication date, and study quality was appraised using the Hawker checklist. Studies reporting the findings of primary research with participants under 18, whose parent has a life-limiting illness, were eligible for inclusion.
resultsTwenty-one papers met the inclusion criteria (
conclusionsThe review has enabled the voices of children affected by parental life-limiting illness to be heard and will inform the development of guidance for parents and professionals.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.