ArticleJournal of intellectual disabilities : JOID2022
Establishing a national mortality review programme for people with intellectual disabilities: The experience in England.
Article in Journal of intellectual disabilities : JOID, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
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Who cites it
6 citing papers in PubMed.
- The importance of cancer prevention policies to inform and guide preventative and screening measures for people with intellectual disabilities: The COST project "Cancer- Understanding Prevention in Intellectual Disabilities".Journal of intellectual disabilities : JOID · 2026Article
- Health problems of people with intellectual disabilities in general practice: dynamic cohort study between 2012 and 2021 with Dutch routine care data.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026Article
- Specialist intellectual disability liaison nurses in general hospitals in England: cohort study using a large mortality dataset.BMJ open · 2024Article
- All-cause and cause-specific mortality among people with and without intellectual disabilities during the COVID-19 pandemic in the Netherlands: a population-based cohort study.The Lancet. Public health · 2023Article
- Prevalence and incidence of cancer amongst adults with intellectual disability - a systematic review and meta-analysis protocol.HRB open research · 2023Article
- Cancer in deceased adults with intellectual disabilities: English population-based study using linked data from three sources.BMJ open · 2022Article
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Authors and funding
5 authors.
Funding
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Abstract
In England, the national mortality review programme for people with intellectual disabilities, the LeDeR programme, was established in 2015. The programme supports local areas to review the deaths of all people with intellectual disabilities aged 4 years and over. Each death has an initial review; if indicated, a full multi-agency review takes place. The learning from the mortality reviews contributes to service improvements locally and nationally. This paper describes the programme's introduction and processes, exploring the challenges faced, and the successes achieved. It considers the background and rationale for the programme and the steps taken during its implementation, in order that others can learn from our experiences. Now the programme is established, its focus needs to shift so that we have a better understanding about how the findings of mortality reviews are leading to local and national service improvements and their impact.
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