Evidence map›Paper›PMID 33204532›Full record

ArticleJournal of aging research2020

Gaps in Hospice and Palliative Care Research: A Scoping Review of the North American Literature.

Rebecca Antonacci, Carol Barrie, Sharon Baxter, Sarah Chaffey, Srini Chary, Pamela Grassau, Chad Hammond, Mehrnoush Mirhosseini, Raza M Mirza, Kate Murzin and 1 more

Open access · goldAbstract readScoping Review
In one paragraph

Article in Journal of aging research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
0.9field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 16 citations in OpenAlex.

  1. A Multidimensional Narrative Review of Disparities in Hospice Care Use.The American journal of hospice & palliative care · 2026
    Article
  2. Article
  3. Engaging with Culturally and Linguistically Diverse Communities to Promote Palliative Care That Exceeds Expectation.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  4. Article
  5. 'When a patient chooses to die at home, that's what they want… comfort, home': Brilliance in community-based palliative care nursing.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 6 institutions in 1 country.

Rebecca AntonacciInstitute for Life Course and Aging, Factor-Inwentash Faculty of Social Work, University of Toronto, 246 Bloor Street West, Suite 238, Toronto, Ontario M5S 1V4, Canada.ORCID https://orcid.org/0000-0002-5433-8651
Carol BarrieCanadian Frailty Network, Kidd House, 100 Stuart Street, Kingston, Ontario K7L 3N6, Canada.
Sharon BaxterQuality End-of-Life Care Coalition of Canada, Annex D, Saint-Vincent Hospital, 60 Cambridge Street North, Ottawa, Ontario K1R 7A5, Canada.
Sarah ChaffeyInstitute for Life Course and Aging, Factor-Inwentash Faculty of Social Work, University of Toronto, 246 Bloor Street West, Suite 238, Toronto, Ontario M5S 1V4, Canada.
Srini CharyQuality End-of-Life Care Coalition of Canada, Annex D, Saint-Vincent Hospital, 60 Cambridge Street North, Ottawa, Ontario K1R 7A5, Canada.
Pamela GrassauSchool of Social Work, Carleton University, Dunton Tower, 1125 Colonel By Drive, Suite 509, Ottawa, Ontario K1S 5B6, Canada.
Chad HammondQuality End-of-Life Care Coalition of Canada, Annex D, Saint-Vincent Hospital, 60 Cambridge Street North, Ottawa, Ontario K1R 7A5, Canada.
Mehrnoush MirhosseiniQuality End-of-Life Care Coalition of Canada, Annex D, Saint-Vincent Hospital, 60 Cambridge Street North, Ottawa, Ontario K1R 7A5, Canada.
Raza M MirzaInstitute for Life Course and Aging, Factor-Inwentash Faculty of Social Work, University of Toronto, 246 Bloor Street West, Suite 238, Toronto, Ontario M5S 1V4, Canada.
Kate MurzinQuality End-of-Life Care Coalition of Canada, Annex D, Saint-Vincent Hospital, 60 Cambridge Street North, Ottawa, Ontario K1R 7A5, Canada.
Christopher A KlingerNational Initiative for the Care of the Elderly, 246 Bloor Street West, Suite 234, Toronto, Ontario M4S 1V4, Canada.
University of Toronto · CABruyère · CACanadian Hospice Palliative Care Association · CASaint-Vincent Hospital · CACarleton University · CAUniversity of Alberta · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe demand for hospice and palliative care is growing as a result of the increase of an aging population, which is most prominent in North America. Despite the importance of the topic and an increase in hospice and palliative care utilization, there still are gaps in research and evidence within the field.

aimTo determine what gaps currently exist in hospice and palliative/end-of-life care research within the context of a North American setting to ensure that future directions are grounded in appropriate evidence.

methodsUsing Arksey and O'Malley's scoping review framework, six peer-reviewed, and four grey electronic literature databases in healthcare and the social sciences were searched in mid-2019. 111 full-text articles were retrieved, with 25 articles and reports meeting the inclusion criteria. Major themes were identified through thematic context analysis: (1) clinical, (2) system access to care, (3) research methodology, and (4) caregiving-related research gaps.

resultsFindings include strategies for engaging stakeholder organizations and funding agencies, implications for other stakeholder groups such as clinicians and researchers, and highlight implications for policy (e.g., national framework discussion) and practice (e.g., healthcare provider education and training and public awareness).

conclusionReviewing and addressing targeted research gaps is essential to inform future directions in Canada and beyond.

Identifiers

PMID33204532
PMCPMC7661142
OpenAlexW3097875734

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.