Evidence map›Paper›PMID 33203391›Full record

ArticleBMC public health2020

What Matters 2 Adults: a study protocol to develop a new preference-based wellbeing measure with Aboriginal and Torres Strait Islander adults (WM2Adults).

Kirsten Howard, Kate Anderson, Joan Cunningham, Alan Cass, Julie Ratcliffe, Lisa J Whop, Michelle Dickson, Rosalie Viney, Brendan Mulhern, Allison Tong and 1 more

Abstract read
In one paragraph

Article in BMC public health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Preference-based measures of health-related quality of life in Indigenous people: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Pooled it
  2. Aspects of Wellbeing for Indigenous Youth in CANZUS Countries: A Systematic Review.International journal of environmental research and public health · 2022
    Pooled it
  3. Wellbeing of Indigenous Peoples in Canada, Aotearoa (New Zealand) and the United States: A Systematic Review.International journal of environmental research and public health · 2021
    Pooled it
  4. Sensitivity to change of generic preference-based instruments (EQ-5D-3L, EQ-5D-5L, and HUI3) in the context of treatment for people with prescription-type opioid use disorder in Canada.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Trial
  5. BMJ open · 2026
    Article
  6. Article
  7. Holding space: a participatory exploration of first nations health professionals' experiences supporting cancer patients through hospital-based treatment.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
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  17. Review
  18. The Fabric of Aboriginal and Torres Strait Islander Wellbeing: A Conceptual Model.International journal of environmental research and public health · 2021
    Article
  19. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Kirsten HowardSchool of Public Health, Faculty of Medicine and Health, University of Sydney, Sydney, Australia. kirsten.howard@sydney.edu.au.ORCID http://orcid.org/0000-0002-0918-7540
Kate AndersonMenzies School of Health Research, Charles Darwin University, Darwin, Australia.
Joan CunninghamMenzies School of Health Research, Charles Darwin University, Darwin, Australia.
Alan CassMenzies School of Health Research, Charles Darwin University, Darwin, Australia.
Julie RatcliffeHealth and Social Care Economics Group, Caring Futures Institute, Flinders University, Adelaide, Australia.
Lisa J WhopMenzies School of Health Research, Charles Darwin University, Darwin, Australia.
Michelle DicksonSchool of Public Health, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.
Rosalie VineyCentre for Health Economics Research and Evaluation, UTS Business School, University of Technology Sydney, Sydney, Australia.
Brendan MulhernCentre for Health Economics Research and Evaluation, UTS Business School, University of Technology Sydney, Sydney, Australia.
Allison TongSchool of Public Health, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.
Gail GarveyMenzies School of Health Research, Charles Darwin University, Darwin, Australia.

Funding

National Health and Medical Research Council 1125434
6 · The paper itself

Abstract

backgroundUnderstandings of health and wellbeing are culturally bound. Many Aboriginal and Torres Strait Islander people perceive wellbeing and quality of life (QOL) differently from the Western biomedical models of health underpinning existing QOL instruments. Any instrument to measure the wellbeing of Aboriginal and Torres Strait Islander people should be culturally appropriate and safe, include relevant dimensions, and be informed by their own values and preferences. Existing QOL instruments do not meet these standards. This study will generate a new preference-based wellbeing measure, WM2Adults, for Aboriginal and Torres Strait Islander adults, underpinned by their values and preferences.

methodsA mixed methods approach will be used; we will employ decolonising methodologies, privilege Aboriginal and Torres Strait Islander voices and perspectives, and adopt a strengths-based approach rather than a deficit lens. Yarning Circles will be conducted with Aboriginal and Torres Strait Islander people across Australia. A candidate item pool will be developed from these data, on which psychometric analysis and validity testing will be undertaken to develop a descriptive system. Following finalisation of the descriptive system, wellbeing states will be valued using a quantitative preference-based approach (best-worst scaling) with a diverse sample of Aboriginal and Torres Strait Islander adults (n = 1000). A multinomial (conditional) logit framework will be used to analyse responses and generate a scoring algorithm for the new preference-based WM2Adults measure. DISCUSSION: The new wellbeing measure will have wide applicability in assessing the effectiveness and cost-effectiveness of new programs and services for Aboriginal and Torres Strait Islander people. Results will be disseminated through journals, conferences and policy forums, and will be shared with Aboriginal and Torres Strait Islander communities, organisations and research participants.

Indexed as

Quality of LifeAdultAustraliaAustralian Aboriginal and Torres Strait Islander PeoplesHumansAboriginal and Torres Strait islander peoplesPreferencesValuesWellbeing

Identifiers

PMID33203391
PMCPMC7672853

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.