Evidence map›Paper›PMID 33198746›Full record

ArticleBMC medical ethics2020

Why have Advance Directives failed in Spain?

Benjamín Herreros, María Benito, Pablo Gella, Emanuele Valenti, Beatriz Sánchez, Tayra Velasco

Abstract read
In one paragraph

Article in BMC medical ethics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. User appraisal of a booklet for advance care planning in multiple sclerosis: a multicenter, qualitative Italian study.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024
    Article
  5. Advance Directives in Portugal: A Qualitative Survey.Healthcare (Basel, Switzerland) · 2024
    Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Benjamín HerrerosInstituto de Ética Clínica Francisco Vallés, Universidad Europea de Madrid, Madrid, Spain. benjaminherreros@gmail.com.ORCID 0000-0001-6708-7102
María BenitoLegal Medicine, Psychiatry and Pathology Department, Universidad Complutense , Plaza de Ramón y Cajal, s/n, 28040, Madrid, Spain.
Pablo GellaInstituto de Ética Clínica Francisco Vallés, Universidad Europea, Plaza de Francisco Morano, s/n, 28005, Madrid, Spain.
Emanuele ValentiCentre for Ethics in Medicine, Bristol Medical School, University of Bristol, 39 Whatley Road, Bristol, BS8 2PS, UK.
Beatriz SánchezUnidad de Medicina Interna, Hospital Universitario Fundación Alcorcón, Calle Budapest 1, 28922, Alcorcón, Madrid, Spain.
Tayra VelascoFacultad de Enfermería, Fisioterapia y Podología, Universidad Complutense, Plaza de Ramón y Cajal, s/n, 28040, Madrid, Spain.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIn Spain, there has been great effort by lawmakers to put Advance Directives (ADs) into practice since 2002. At the same time, the field of bioethics has been on the rise, a discipline that has spurred debate on the right of patients to exercise their autonomy. Despite all this, the implementation of ADs can be said to have failed in Spain, because its prevalence is very low, there is a great lack of knowledge about them and they have very little impact on clinical decisions. The purpose of this article is to analyze and discuss the main reasons for the failure of ADs in Spain. MAIN BODY: The main reasons why ADs have no impact on clinical practice in Spain have been fundamentally four: (1) the training of health professionals about the end of life and AD is lacking; (2) there has been no public process to increase awareness about AD, and therefore people (with the exception of specific highly sensitized groups) know little about them; (3) the bureaucratic procedure to document and implement ADs is excessively complex and cumbersome, creating a significant barrier to their application; (4) in Spain, the remnants of a paternalistic medical culture continue to exist, which causes shared decision-making to be difficult.

conclusionDue to the four reasons mentioned above, AD have not been a useful tool to help honor patients' autonomous decisions about their future care and, therefore, they have not achieved their objective. However, despite the difficulties and problems identified, it has also been observed that health care professionals and the Spanish public have a very positive view of AD. Having identified the problems which have kept AD from being successful, strategies must be developed to help improve their implementation into the future.

Indexed as

Advance DirectivesHealth PersonnelHumansSpainAdvance care planningAdvance directiveLiving will

Identifiers

PMID33198746
PMCPMC7667789

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.