ArticlePloS one2020
Providing person-centered care for patients with complex healthcare needs: A qualitative study.
Article in PloS one, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- From Patient Voice to Organizational Adaptability: A Critical Narrative Review and Conceptual Model for Personalized Care.Healthcare (Basel, Switzerland) · 2026Review
- Expanding the Concept of Precision Nursing from a Caring Science Perspective, with Clinical Examples from a Swedish Emergency Care Context.Healthcare (Basel, Switzerland) · 2026Article
- Relocating pediatric, hospital-based care towards preventive care: a qualitative study on modular care provision for children with developmental disabilities.European journal of pediatrics · 2026Article
- Article
- Continuity of care for children with anorexia nervosa in the Netherlands: a modular perspective.European journal of pediatrics · 2024Article
- Integrated care for children living with complex care needs: navigating the long and winding road.European journal of pediatrics · 2023Article
- Predictors of Medical Care Delay or Avoidance Among Chinese Adults During the COVID-19 Pandemic.Patient preference and adherence · 2023Article
- Everyday life during the childhood cancer trajectory-childhood cancer survivors' descriptions of the role of caring support.Frontiers in rehabilitation sciences · 2023Article
- Article
- The Required Competencies of Bachelor- and Master-Educated Nurses in Facilitating the Development of an Effective Workplace Culture in Nursing Homes: An Integrative Review.International journal of environmental research and public health · 2022Review
- Destination unknown: Parents and healthcare professionals' perspectives on transition from paediatric to adult care in Down syndrome.Journal of applied research in intellectual disabilities : JARID · 2022Article
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Authors and funding
7 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with chronic conditions have complex healthcare needs that lead to challenges for adequate healthcare provision. Current healthcare services do not always respond adequately to their needs. A modular perspective, in particular providing visualization of the modular service architecture, is promising for improving the responsiveness of healthcare services to the complex healthcare needs of people with chronic conditions. The modular service architecture provides a comprehensive representation of the components and modules of healthcare provision. In this study, we explore this further in a qualitative multiple case study on healthcare provision for children with Down syndrome in the Netherlands.
methodsData collection for four cases involved 53 semi-structured interviews with healthcare professionals and 21 semi-structured interviews with patients (the parents of children with Down syndrome as proxy). In addition, we gathered data by means of practice observations and analysis of relevant documents. The interviews were audio-recorded, transcribed verbatim and analyzed utilizing the Miles and Huberman approach.
resultsOur study shows that the perspectives on healthcare provision of professionals and patients differ substantially. The visualization of the modular service architecture that was based on the healthcare professionals' perspective provided a complete representation of (para)medical outcomes relevant to the professionals' own discipline. In contrast, the modular service architecture based on the patients' perspective, which we define as a person-centered modular service architecture, provided a representation of the healthcare service that was primarily based on functional outcomes and the overall wellbeing of the patients.
conclusionOur study shows that visualization of the modular service architecture can be a useful tool to better address the complex needs and requirements of people with a chronic condition. We suggest that a person-centered modular service architecture that focuses on functional outcomes and overall wellbeing, enables increased responsiveness of healthcare services to people with complex healthcare needs and provision of truly person-centered care.
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