ReviewFrontiers in pediatrics2020
Decisions Parents Make When Faced With Potentially Life-Limiting Fetal Diagnoses and the Importance of Perinatal Palliative Care.
Review in Frontiers in pediatrics, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed.
- Indications for cesarean delivery among patients with life-limiting fetal diagnoses.Pregnancy (Hoboken, N.J.) · 2026Article
- Introducing the Metaphorical Anchor Model: A Mixed-Methods Study of Cognitive Metaphor Use in Palliative Care.Behavioral sciences (Basel, Switzerland) · 2026Article
- Supporting Parental Decision-Making After Life-Limiting Fetal Diagnoses: The Role of Perinatal Hospice and the NOVA-L Decision Support System.Healthcare (Basel, Switzerland) · 2026Article
- Parents' hope in perinatal and neonatal palliative care: a scoping review.BMC palliative care · 2023Article
- Specialist perinatal palliative care: a retrospective review of antenatal referrals to a children's palliative care service over 14 years.BMC palliative care · 2023Article
- Practice variations for fetal and neonatal congenital heart disease within the Children's Hospitals Neonatal Consortium.Pediatric research · 2023Article
- The Path Is Made by Walking-Mapping the Healthcare Pathways of Parents Continuing Pregnancy after a Severe Life-Limiting Fetal Diagnosis: A Qualitative Interview Study.Children (Basel, Switzerland) · 2022Article
- Redefining the Relationship: Palliative Care in Critical Perinatal and Neonatal Cardiac Patients.Children (Basel, Switzerland) · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
When parents face a potentially life-limiting fetal diagnosis in pregnancy, they then have a series of decisions to make. These include confirmatory testing, termination, and additional choices if they choose to continue the pregnancy. A perinatal palliative team provides a safe, compassionate, and caring space for parents to process their emotions and discuss their values. In a shared decision-making model, the team explores how a family's faith, experiences, values, and perspectives shape the goals for care. For some families, terminating a pregnancy for any reason conflicts with their faith or values and pursuing life prolonging treatments in order to give their baby the best chances for survival is the most important. For others, having a postnatal confirmatory diagnosis of a life limiting or serious medical condition gives them the assurance they need to allow their child a natural death. Others want care to be comfort-focused in order to maximize the time they have to be together as a family. Through this journey, a perinatal palliative team can provide the support and encouragement for families to express their goals and wishes, as well as find meaning and hope.
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Registered trials
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