Evidence map›Paper›PMID 33192054›Full record

ReviewPatient preference and adherence2020

Measuring the Patient Experience of Mental Health Care: A Systematic and Critical Review of Patient-Reported Experience Measures.

Sara Fernandes, Guillaume Fond, Xavier Yves Zendjidjian, Karine Baumstarck, Christophe Lançon, Fabrice Berna, Franck Schurhoff, Bruno Aouizerate, Chantal Henry, Bruno Etain and 7 more

Registry-linked trialAbstract readReview
In one paragraph

Review in Patient preference and adherence, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02491866 (Development and Implementation of a Computerized Adaptative Testing), which is not on this map. Cited by 37 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
37citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT02491866 naunknown statusnot on this map

Development and Implementation of a Computerized Adaptative Testing (CAT) of Self-perceived Quality of Care in Psychiatry

TypeinterventionalSponsorAssistance Publique Hopitaux De MarseilleRan2015 to 2018Enrolled1,400ConditionsMental DisordersArmsto develop and validate a Computerized Adaptative Testing
3 · Its place in the literature

Who cites it

37 citing papers in PubMed, 5 syntheses or guidelines pooled it.

  1. Pooled it
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  5. Capturing the experiences of patients with inherited optic neuropathies: a systematic review of patient-reported outcome measures (PROMs) and qualitative studies.Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie · 2022
    Pooled it
  6. Review
  7. Initial Co-Design Development of a Questionnaire to Measure Patient Preferences in a Danish Mental Healthcare Setting.Health expectations : an international journal of public participation in health care and health policy · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Sara FernandesAix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France.ORCID 0000-0002-8849-787X
Guillaume FondAix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France.ORCID 0000-0003-3249-2030
Xavier Yves ZendjidjianAix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France.ORCID 0000-0002-4028-7398
Karine BaumstarckAix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France.
Christophe LançonAix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France.
Fabrice BernaFondaMental Foundation, Créteil, France.ORCID 0000-0002-6118-0629
Franck SchurhoffFondaMental Foundation, Créteil, France.
Bruno AouizerateFondaMental Foundation, Créteil, France.
Chantal HenryFondaMental Foundation, Créteil, France.
Bruno EtainFondaMental Foundation, Créteil, France.ORCID 0000-0002-5377-1488
Ludovic SamalinFondaMental Foundation, Créteil, France.
Marion LeboyerFondaMental Foundation, Créteil, France.ORCID 0000-0001-5473-3697
Pierre-Michel LlorcaFondaMental Foundation, Créteil, France.ORCID 0000-0001-7438-8990
Magali ColdefyInstitute for Research and Information in Health Economics (IRDES), Paris, France.
Pascal AuquierAix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France.
Laurent BoyerAix-Marseille University, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, France.
French PREMIUM Group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere is growing concern about measuring patient experience with mental health care. There are currently numerous patient-reported experience measures (PREMs) available for mental health care, but there is little guidance for selecting the most suitable instruments. The objective of this systematic review was to provide an overview of the psychometric properties and the content of available PREMs.

methodsA comprehensive review following the preferred reporting items for systematic reviews and meta-analysis (PRISMA) guidelines was conducted using the MEDLINE database with no date restrictions. The content of PREMs was analyzed using an inductive qualitative approach, and the methodological quality was assessed according to Pesudovs quality criteria.

resultsA total of 86 articles examining 75 PREMs and totaling 1932 items were included. Only four PREMs used statistical methods from item response theory (IRT). The 1932 items covered seven key mental health care domains: interpersonal relationships (22.6%), followed by respect and dignity (19.3%), access and care coordination (14.9%), drug therapy (14.1%), information (9.6%), psychological care (6.8%) and care environment (6.1%). Additionally, a few items focused on patient satisfaction (6.7%) rather than patient experience. No instrument covered the latent trait continuum of patient experience, as defined by the inductive qualitative approach, and the psychometric properties of the instruments were heterogeneous.

conclusionThis work is a critical step in the creation of an item library to measure mental health care patient-reported experience that will be used in France to develop, validate, and standardize item banks and computerized adaptive testing (CAT) based on IRT. It will also provide internationally replicable measures that will allow direct comparisons of mental health care systems.

trial registrationNCT02491866.

Indexed as

bipolar disorderhealth services researchmajor depressionpatient experiencepatient-reported experience measurespatient satisfactionschizophreniasystematic review

Identifiers

PMID33192054
PMCPMC7653683

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.