ArticleMultiple sclerosis and related disorders2021
Distress and risk perception in people living with multiple sclerosis during the early phase of the COVID-19 pandemic.
Article in Multiple sclerosis and related disorders, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Risk perception of severity or death from COVID-19: a systematic review of the factors associated.Frontiers in public health · 2025Pooled it
- Occupational outcomes of people with multiple sclerosis during the COVID-19 pandemic: a systematic review with meta-analysis.Frontiers in public health · 2023Pooled it
- Psychological impacts of COVID-19 pandemic on individuals living with multiple sclerosis: A rapid systematic review.Multiple sclerosis and related disorders · 2022Pooled it
- COVID-19 risk perception, preventive behaviors, vaccination acceptance and hesitancy, and psychosocial status in liver transplant recipients.Frontiers in public health · 2026Article
- Investigating COVID-19-Induced Adjustment Disorder Among Iranian Patients With Multiple Sclerosis in Pandemic Time.Neuropsychopharmacology reports · 2025Article
- Trauma Burden Affected People with Multiple Sclerosis During SARS-CoV-2 Pandemic.Journal of clinical medicine · 2025Article
- Vaccination status and self-reported side effects after SARS-CoV-2 vaccination in relation to psychological and clinical variables in patients with multiple sclerosis.Scientific reports · 2024Article
- Factors influencing risk perception during Public Health Emergencies of International Concern (PHEIC): a scoping review.BMC public health · 2024Article
- Era of COVID-19 in Multiple Sclerosis Care.Neurologic clinics · 2024Review
- Depression, Anxiety, and Suicidality in Individuals With Chronic Traumatic Brain Injury Before and During the COVID-19 Pandemic: A National Institute on Disability, Independent Living, and Rehabilitation Research Traumatic Brain Injury Model Systems Study.Archives of physical medicine and rehabilitation · 2023Article
- Exploring COVID-19 experiences for persons with multiple sclerosis and carers: An Australian qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Examining the Influence of Housing Conditions and Daily Greenspace Exposure on People's Perceived COVID-19 Risk and Distress.International journal of environmental research and public health · 2022Article
- COVID-19 contamination through food: A study with Brazilian consumers of different socioeconomic and demographic characteristics.Journal of sensory studies · 2022Article
- Mental Health Status of People with Multiple Sclerosis during the COVID-19 Pandemic.Journal of clinical medicine · 2022Article
- Social isolation, loneliness and mental health sequelae of the Covid-19 pandemic in Parkinson's disease.International review of neurobiology · 2022Article
- Coping strategies patterns to buffer the psychological impact of the State of Emergency in Spain during the COVID-19 pandemic's early months.Scientific reports · 2021Article
- Public health adherence and information-seeking for people with chronic conditions during the early phase of the COVID-19 pandemic.PM & R : the journal of injury, function, and rehabilitation · 2021Article
- Burden of COVID-19 Pandemic Perceived by Polish Patients with Multiple Sclerosis.Journal of clinical medicine · 2021Article
- Fear of COVID-19, problems accessing medical appointments, and subjective experience of disease progression, predict anxiety and depression reactions in patients with Multiple Sclerosis.Multiple sclerosis and related disorders · 2021Article
- Coping with stress during the first wave of the COVID-19 pandemic by Turkish people with Multiple Sclerosis: The relationship between perceived stress and quality of life.Multiple sclerosis and related disorders · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundPeople living with MS during COVID-19 are experiencing the disruptions of the pandemic and concerns that their health status may place them at greater risk for worse COVID-19 outcomes.
objectiveThis study sought to understand how people living with MS in the United States experienced distress and perceived their COVID-19-related risk during the first surge of the pandemic.
methodsThis was a web-based, self-report survey of people with MS who were living in the United States during the early stage of COVID-19. Primary outcomes were depression, anxiety, and positive-affect and well-being. Participants (N = 491) also provided data on demographics, MS-related factors, COVID-19 factors, and psychological coping.
resultsPsychological distress was associated with age, psychological coping strategies, and having had symptoms consistent with COVID-19, but not with MS disease-related variables and COVID-19 risk factors. Perception of COVID-19-related risk was associated with age, MS disease severity, COVID-19-related factors, and anxiety.
conclusionThis study demonstrated that even during COVID-19, distress and risk perception are primarily driven by psychological factors, experiencing symptoms consistent with COVID-19 and age, with minimal contribution from individual differences in health status, providing an impetus for continued efforts to optimize psychological interventions for people living with MS.
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Registered trials
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