Evidence map›Paper›PMID 33185553›Full record

ArticleJournal of medical Internet research2020

Perspectives of Patients, Health Care Professionals, and Developers Toward Blockchain-Based Health Information Exchange: Qualitative Study.

Keehyuck Lee, Kahyun Lim, Se Young Jung, Hyerim Ji, Kyungpyo Hong, Hee Hwang, Ho-Young Lee

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Keehyuck Lee *Office of eHealth Research and Business, Seoul National University Bundang Hospital, Seongnam-si, Republic of Korea.ORCID 0000-0001-6906-4887
Kahyun Lim *Office of eHealth Research and Business, Seoul National University Bundang Hospital, Seongnam-si, Republic of Korea.ORCID 0000-0001-8083-6112
Se Young JungOffice of eHealth Research and Business, Seoul National University Bundang Hospital, Seongnam-si, Republic of Korea.ORCID 0000-0001-9946-8807
Hyerim JiOffice of eHealth Research and Business, Seoul National University Bundang Hospital, Seongnam-si, Republic of Korea.ORCID 0000-0003-3878-0244
Kyungpyo HongOffice of eHealth Research and Business, Seoul National University Bundang Hospital, Seongnam-si, Republic of Korea.ORCID 0000-0002-8013-4409
Hee HwangOffice of eHealth Research and Business, Seoul National University Bundang Hospital, Seongnam-si, Republic of Korea.ORCID 0000-0002-7964-1630
Ho-Young LeeOffice of eHealth Research and Business, Seoul National University Bundang Hospital, Seongnam-si, Republic of Korea.ORCID 0000-0001-6518-0602

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAlthough the electronic health record system adoption rate has reached 96% in the United States, implementation and usage of health information exchange (HIE) is still lagging behind. Blockchain has come into the spotlight as a technology to solve this problem. However, there have been no studies assessing the perspectives of different stakeholders regarding blockchain-based patient-centered HIE.

objectiveThe objective of this study was to analyze the awareness among patients, health care professionals, and information technology developers toward blockchain-based HIE, and compare their different perspectives related to the platform using a qualitative research methodology.

methodsIn this qualitative study, we applied grounded theory and the Promoting Action on Research Implementation in the Health Service (PARiHS) framework. We interviewed 7 patients, 7 physicians, and 7 developers, for a total of 21 interviewees.

resultsRegarding the leakage of health information, the patient group did not have concerns in contrast to the physician and developer groups. Physicians were particularly concerned about the fact that errors in the data cannot be easily fixed due to the nature of blockchain technology. Patients were not against the idea of providing information for clinical trials or research institutions. They wished to be provided with the results of clinical research rather than being compensated for providing data. The developers emphasized that blockchain must be technically mature before it can be applied to the health care scene, and standards of medical information to be exchanged must first be established.

conclusionsThe three groups' perceptions of blockchain were generally positive about the idea of patients having the control of sharing their own health information. However, they were skeptical about the cooperation among various institutions and implementation for data standardization in the establishment process, in addition to how the service will be employed in practice. Taking these factors into consideration during planning, development, and operation of a platform will contribute to establishing practical treatment plans and tracking in a more convenient manner for both patients and physicians. Furthermore, it will help expand the related research and health management industry based on blockchain.

Indexed as

AdolescentAdultAgedBlockchainDelivery of Health CareHealth Information ExchangeHealth PersonnelHumansMiddle AgedPatientsQualitative ResearchResearch DesignYoung Adultblockchainhealth information exchangequalitative study

Identifiers

PMID33185553
PMCPMC7695529

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.