Evidence map›Paper›PMID 33184712›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021

Exploring advance care planning awareness, experiences, and preferences of people with cancer and support people: an Australian online cross-sectional study.

Helena Rodi, Karen Detering, Marcus Sellars, Ashley Macleod, Julia Todd, Sonia Fullerton, Amy Waller, Linda Nolte

Abstract read
PubMed Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Brain cancer patient and support persons' experiences of psychosocial care: a mapping of research outputs.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Review
  11. Advance care directive prevalence among older Australians and associations with person-level predictors and quality indicators.Health expectations : an international journal of public participation in health care and health policy · 2021
    Article
  12. Article
  13. Review
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Helena RodiAdvance Care Planning Australia, Austin Health, PO Box 5555, Heidelberg, Melbourne, Victoria, 3084, Australia. helena.rodi@austin.org.au.
Karen DeteringAdvance Care Planning Australia, Austin Health, PO Box 5555, Heidelberg, Melbourne, Victoria, 3084, Australia.
Marcus SellarsAdvance Care Planning Australia, Austin Health, PO Box 5555, Heidelberg, Melbourne, Victoria, 3084, Australia.
Ashley MacleodAdvance Care Planning Australia, Austin Health, PO Box 5555, Heidelberg, Melbourne, Victoria, 3084, Australia.
Julia ToddAdvance Care Planning Australia, Austin Health, PO Box 5555, Heidelberg, Melbourne, Victoria, 3084, Australia.
Sonia FullertonDepartment of Palliative Medicine, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia.
Amy WallerSchool of Medicine and Public Health, University of Newcastle, Newcastle, New South Wales, Australia.
Linda NolteAdvance Care Planning Australia, Austin Health, PO Box 5555, Heidelberg, Melbourne, Victoria, 3084, Australia.

Funding

Department of Health, Australian Government CA-G1819
6 · The paper itself

Abstract

purposeTo explore advance care planning (ACP) awareness, experiences, and preferences of people with cancer and support people of someone with cancer, in Australia.

methodsDescriptive analysis and independent group t tests were used to examine data from a national, online cross-sectional survey.

resultsOf 705 respondents (440 people with cancer, 265 support people), 48.5% of participants had heard of ACP prior to the survey and 65% had discussed their values or preferences with someone. Significantly more people aged under 65 years had discussed their preferences than their older counterparts. Most (93%) discussions occurred with family or friends, but only 3.7% occurred with a health professional. A total of 33% had documented their preferences, with support people, women, and people aged under 65 years significantly more likely to have signed a legal document appointing someone to make medical decisions on their behalf. Views varied about the preferred timing of ACP and end-of-life care discussions (38.3% when cancer is incurable compared to 20% at diagnosis). Only 3.0% did not want to discuss ACP at all. Topics discussed were significantly different based on cohort, gender, age group, treatment status, and region.

conclusionDespite increasing community awareness of ACP, understanding remains low amongst cancer patients and support people, who generally rely on discussions with family and friends rather than health professionals. ACP should be introduced early across multiple interactions with health professionals, discuss a broad range of ACP relevant topics, and involve the cancer patient and their support person.

Indexed as

AdolescentAdultAdvance Care PlanningAgedAged, 80 and overAustraliaCross-Sectional StudiesFemaleHumansInternet-Based InterventionMaleMiddle AgedNeoplasmsSurveys and QuestionnairesYoung AdultAdvance care directiveAdvance care planningCaregiverEnd-of-life careOncologySurvey

Identifiers

PMID33184712

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.