ArticleArchives of disease in childhood2021
Stressors and support system among parents of neonates hospitalised with systemic infections: qualitative study in South India.
Article in Archives of disease in childhood, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed, 19 citations in OpenAlex.
- Status of and factors influencing paternal fatigue in children with retinoblastoma: a cross-sectional study.BMC cancer · 2025Article
- Parental involvement in infection prevention and control in low- and middle-income country neonatal units: a scoping review.Antimicrobial resistance and infection control · 2025Article
- "More than medical care": a qualitative study on family support systems in the neonatal intensive care unit in Ghana.BMC pediatrics · 2025Article
- Psychological distress in the neonatal intensive care unit: a meta-review.Pediatric research · 2024Review
- Parent experiences of the esophageal atresia journey during the early post-natal period: results from a support group perspective.European journal of pediatrics · 2024Article
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo explore stressors and support system for families with a neonate admitted with a systemic infection.
designQualitative study using in-depth interviews (IDIs), based on principles of grounded theory.
settingA busy level III neonatal unit of a tertiary care teaching hospital in coastal Karnataka, India, between May 2018 and January 2019.
participantsParents and accompanying attendants of neonates admitted to the neonatal unit with one or more systemic infections.
methodsUsing purposive sampling, semi-structured IDIs were audio recorded, transcribed verbatim and a thematic analysis was performed.
resultsThirty-eight participants were interviewed, lasting between 30 and 59 min. Babies' hospitalisation with sepsis was an unprecedented, sudden and overwhelming event. Stressors related to uncertainties due to the information gap inherent to the nature of illness, cultural rituals, financial constraints, barriers to bonding and others. Parents reported experiencing insomnia, gastric disturbances and fatigue. Support (emotional and/or financial) was sought from families and friends, peers, staff and religion. Availability and preference of emotional support system differed for mothers and fathers. In our context, families, peers and religion were of particular importance for reinforcing the available support system. Participant responses were shaped by clinical, cultural, financial, religious and health service contexts.
conclusionDesigning a family-centred care in our context needs consideration of stressors that extend beyond the immediate neonatal intensive care unit environment and interactions. Understanding the influence of the nature of illness, financial, familial and cultural contexts helps identify the families who are particularly vulnerable to stress.
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