Evidence map›Paper›PMID 33176897›Full record

ArticleCardiology in the young2021

Optimism despite profound uncertainty: school and social relationships in adolescents with single ventricle heart disease.

Jennifer K Peterson, Ellen F Olshansky, Yuqing Guo, Lorraine S Evangelista, Nancy A Pike

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Cardiology in the young, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.1field-weighted citation impact, top 45% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 2 citations in OpenAlex.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 4 institutions in 1 country.

Jennifer K PetersonJohns Hopkins University School of Nursing, Baltimore, MD, USA.ORCID https://orcid.org/0000-0001-7628-567X
Ellen F OlshanskySue and Bill Gross School of Nursing, University of California, Irvine, CA, USA.
Yuqing GuoSue and Bill Gross School of Nursing, University of California, Irvine, CA, USA.
Lorraine S EvangelistaUniversity of Texas Medical Branch School of Nursing, Galveston, TX, USA.
Nancy A PikeSchool of Nursing, University of California, Los Angeles, CA, USA.
University of California, Irvine · USChildren's Hospital of Los Angeles · USJohns Hopkins University · USThe University of Texas Medical Branch at Galveston · US

Funding

Cerebral Artery Integrity Linked to Brain Injury and Cognition in Congenital Heart DiseaseR01NR016463 · NINR · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI KUMAR, RAJESH, PIKE, NANCY ANN · 2016 to 2019
$2.0M
Memory and Brain Structure in Adolescents with Single Ventricle Heart DiseaseR01NR013930 · NINR · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI PIKE, NANCY ANN · 2013 to 2016
$1.4M
American Heart Association-American Stroke Association 15PRE25300024NINR NIH HHS R01 NR013930NINR NIH HHS R01 NR016463
6 · The paper itself

Abstract

backgroundSurvivors of single ventricle heart disease must cope with the physical, neurodevelopmental, and psychosocial sequelae of their cardiac disease, which may also affect academic achievement and social relationships. The purpose of this study was to qualitatively examine the experiences of school and social relationships in adolescents with single ventricle heart disease.

methodsA descriptive phenomenological methodology was employed, utilising semi-structured interviews. Demographic and clinical characteristics were obtained via chart review.

resultsFourteen adolescents (aged 14 to 19 years) with single ventricle heart disease participated. Interviews ranged from 25 to 80 minutes in duration. Four themes emerged from the interviews, including "Don't assume": Pervasive ableism; "The elephant in the room": Uncertain future; "Everyone finds something to pick on": Bullying at school; "They know what I have been through": Social support. The overall essence generated from the data was "optimism despite profound uncertainty."

conclusionsAdolescents with single ventricle heart disease identified physical limitations and school challenges in the face of an uncertain health-related future. Despite physical and psychosocial limitations, most remained optimistic for the future and found activities that were congruent with their abilities. These experiences reflect "optimism despite profound uncertainty."

Indexed as

Heart DiseasesInterpersonal RelationsAdolescentHumansSchoolsSocial SupportUncertaintyacademic achievementFontan procedurepeer relationshipsqualitative research

Identifiers

PMID33176897
PMCPMC7897217
OpenAlexW3101161456

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.