ArticleQualitative health research2021
Sick of the Sick Role: Narratives of What "Recovery" Means to People With CFS/ME.
Article in Qualitative health research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- What people with stress-related disorders experience as being supportive for recovery - a systematic review and meta-synthesis of qualitative studies.International journal of qualitative studies on health and well-being · 2025Pooled it
- ME/CFS and the emotional toll of persistent disbelief: from epistemic to affective injustice.Medicine, health care, and philosophy · 2026Article
- Narratives of recovery from persistent fatigue: a stepwise learning process.Scandinavian journal of primary health care · 2026Article
- Beyond access: Racial and socioeconomic disparities in device use among youth with type 1 diabetes.SSM. Qualitative research in health · 2026Article
- Contested illness and communication: Positioning long Covid in online discussion forums.Journal of health psychology · 2026Article
- Recovery from chronic fatigue syndrome: a reflexive thematic analysis of experiences of people before, during and after treatment.International journal of qualitative studies on health and well-being · 2025Article
- 'I'm Not a Bad Mom, I'm a Sick Mom': Using Photovoice to Examine Parental Recovery Narratives Given Institutional Constraints.Sociology of health & illness · 2025Article
- Rethinking 'Recovery': A Comparative Qualitative Analysis of Experiences of Intensive Care With COVID and Long Covid in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Perceived discrimination in fatigue: a qualitative interview study in the SOMA.SOC project.Frontiers in sociology · 2025Article
- Article
- Constitution of Long COVID illness, patienthood and recovery: a critical synthesis of qualitative studies.BMJ open · 2024Article
- A phenomenological study on the lived experience of men with Chronic Fatigue Syndrome.Journal of health psychology · 2024Article
- Invalidated and 'salty': an auto/biographical and theoretical review of the lived experiences of individuals with PoTS.Frontiers in sociology · 2024Article
- The fragile process of Homecoming - Young women in recovery from severe ME/CFS.International journal of qualitative studies on health and well-being · 2023Article
- Acquiring a new understanding of illness and agency: a narrative study of recovering from chronic fatigue syndrome.International journal of qualitative studies on health and well-being · 2023Article
- Institutional role conflict in the digital age: The case of diabetes management at school.SSM. Qualitative research in health · 2023Article
- Chronic patients as retirement-aged workers: the impact of employment-based health insurance and chronic conditions on health-related working capacity and late-life career participation.European journal of ageing · 2022Article
- Assessment of socio-relational self-efficacy in breast cancer patients: Italian validation of the social relationship coping efficacy scale (SRCE-I).BMC psychology · 2022Article
- "Communitas in Crisis": An Autoethnography of Psychosis Under Lockdown.Qualitative health research · 2021Article
- "Kicking and Screaming" or "Gracefully Conceding": Creative Nonfiction Stories of Aging With Multiple Sclerosis.Qualitative health research · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Little is known about what recovery means to those with chronic fatigue syndrome/myalgic encephalomyelitis, a poorly understood, disabling chronic health condition. To explore this issue, semi-structured interviews were conducted with patients reporting improvement (
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.