SynthesisDementia and geriatric cognitive disorders2020
The Experience of Lived Time in People with Dementia: A Systematic Meta-Synthesis.
Synthesis in Dementia and geriatric cognitive disorders, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- 'I do Things that I don't Really Want to do …': Understanding the Everyday Lives of Family Carers of People With Dementia.Dementia (London, England) · 2026Article
- Pain Management in People With Dementia Living in Nursing Homes: A Focused Ethnographic Study.Dementia (London, England) · 2026Article
- Everyday life and boredom of people living with dementia in residential long-term care: a merged methods study.BMC geriatrics · 2024Article
- Physicians' understandings and experience of advance care planning in Norwegian nursing homes: a qualitative study.BMC palliative care · 2024Article
- Religion and the everyday citizenship of people with dementia in Nigeria: A qualitative study.African journal of disability · 2024Article
- Family relationships as a source of narrative identity of people with advanced dementia.BMC geriatrics · 2023Article
- Lifeworld perspectives of people with dementia: a meta-aggregation of qualitative studies.BMC geriatrics · 2022Article
- Taking time: The temporal politics of dementia, care and support in the neighbourhood.Sociology of health & illness · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionFor people with dementia, lived time is important to understand, as the condition affects memory, perceptions of time, and life expectancy. The aim of this study was to locate, interpret, and synthesize the experience of lived time for people with dementia.
methodThis article presents a qualitative systematic meta-synthesis. The theoretical framework of lifeworlds by van Manen provided the context for the study. The Critical Appraisal Skills Programme criteria for qualitative studies were used to appraise the studies. Sixty-one qualitative research studies based on interviews with people with dementia were included in the review. The analysis followed the principles of interpretive synthesis.
resultsFour categories were revealed: (1) rooted in the past - "I am the same as before"; (2) focussing on the present - "Nobody has tomorrow"; (3) thinking about the future - "What is going to happen to me?"; and (4) changes in the experience of self over time - "I used to…." The latent overall meaning was expressed as "being engaged with the dimensions of time." DISCUSSION/
conclusionThe experience of lived time is an active and important one, enabling people to manage the dementia journey. Future work involving people with dementia should foreground the experience of lived time.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.