ArticleScandinavian journal of primary health care2020
Elephant in the room - Family members´ perspectives on advance care planning.
Article in Scandinavian journal of primary health care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it, 21 citations in OpenAlex.
- Experiences and perspectives of older adults in nursing homes and their families participating in advance care planning: a meta-synthesis of qualitative studies.BMC palliative care · 2025Pooled it
- Family perspectives on and experiences with advance care planning in nursing homes: A thematic synthesis.Journal of advanced nursing · 2025Pooled it
- Application of multimodal nanotechnology and standardized nursing management in ventricular arrhythmia.Biomedical engineering online · 2026Review
- Intergenerational communication about advance care planning between older adults and their adult children: a qualitative dyadic study.BMC geriatrics · 2026Article
- Cocreation of a Digital Tool for Proactive End-of-Life Communication: Protocol for a Participatory Action Research Project.JMIR research protocols · 2026Article
- Death literacy as relational capability: Pathways from social capital to emotional support.Palliative care and social practice · 2026Article
- Collaboration and Communication in Care at the Nursing Home: The Next of Kin's Experiences of Participation Following Educational Intervention for Staff.Nursing reports (Pavia, Italy) · 2025Article
- Exploration of interprofessional collaboration for the diagnosis of infections and antibiotic prescription in nursing homes using multiple case study observational research.JAC-antimicrobial resistance · 2025Article
- Thanks for hearing me: key elements of primary care according to older patients.Scandinavian journal of primary health care · 2024Article
- 'Someone must do it': multiple views on family's role in end-of-life care - an international qualitative study.Palliative care and social practice · 2024Article
- Trustful conversations: a qualitative interview study on older patients' experiences of the interventionPrimary health care research & development · 2023Article
- Role of patients' family members in end-of-life communication: an integrative review.BMJ open · 2023Review
- Prevalence, content and significance of advance care planning in nursing home patients.Scandinavian journal of primary health care · 2022Article
- Who should talk with patients about their end-of-life care wishes? A nationwide survey of the Hungarian population.Scandinavian journal of primary health care · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo explore family members' experiences of advance care planning in nursing homes.
designIndividual interviews. Thematic analysis.
settingFour nursing homes in Sweden. SUBJECTS: Eighteen family members of deceased nursing home patients.
main outcome measuresFamily members' experiences of advance care planning in nursing homes.
resultsFamily members' experiences of advance care planning in a nursing home context involved five themes:
conclusionOur study stresses the significance of staff involving the patient and family members in the advance care planning process in nursing homes, thereby adapting the care in line with patient's wishes, and for the patient to share these preferences with family members. Education in communication related to the subject may be important to shape advance care planning. Key points Knowledge on advance care planning (ACP) in a nursing home (NH) context from the perspective of family members is limited. Role of the nurse in ACP is seen as central, whereas physician involvement is often perceived to be lacking. Significance of small details, perceive to symbolize staff competence and respect for patient autonomy. To limit family members' feeling of guilt, communicating end-of-life issues is important in order to align ACP with patient preferences.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.