ArticleJournal of multidisciplinary healthcare2020
Characteristics, Burden of Care and Quality of Life of Next of Kin of People with Dementia Attending Farm-Based Day Care in Norway: A Descriptive Cross-Sectional Study.
Article in Journal of multidisciplinary healthcare, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- The transition of care from farm-based daycare for people with dementia: The perspective of next of kin.International journal of qualitative studies on health and well-being · 2023Article
- Identifying care problem clusters and core care problems of older adults with dementia for caregivers: a network analysis.Frontiers in public health · 2023Article
- The Burden of Next-of-Kin Carers of Dementia Sufferers in the Home Environment.Healthcare (Basel, Switzerland) · 2022Article
- Being sheltered from a demanding everyday life: experiences of the next of kin to people with dementia attending farm-based daycare.International journal of qualitative studies on health and well-being · 2021Article
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeCaring for people with dementia is often associated with burden of care and may influence the quality of life of the next of kin. The aim of this study was to describe the characteristics of the next of kin to people with dementia attending farm-based day care service (FDC) and identify characteristics associated with burden of care and quality of life (QoL) of next of kin. PARTICIPANTS AND
methodsNinety-four dyads of people with dementia and their next of kin were included from 25 FDCs in Norway in this descriptive cross-sectional study. The Relative Stress Scale (RSS) and the QoL-Alzheimer's Disease Scale (QoL-AD) were used as outcomes measures.
resultsThe participants consisted of those who lived with a person with dementia (spouse/partner, 62%) and those who did not (children), with significant differences in age, education level, work employment, perceived social support, depression symptoms, burden of care, and QoL. In multiple regression models, RSS and QoL were associated with living with the person with dementia, anxiety symptoms and perceived social support. In addition, RSS was associated with neuropsychiatric symptoms (NPS) in the people with dementia.
conclusionOur findings underline the importance of obtaining knowledge about the next of kin's burden of care and QoL, of people with dementia attending an FDC. This knowledge is essential for those responsible for providing the best possible services for the next of kin and for developing targeted interventions to support the next of kin.
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