ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021
Patient-reported experience with patient-reported outcome measures in adult patients seen in rheumatology clinics.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 18 citations in OpenAlex.
- Pooled it
- The immaturity of patient engagement in value-based healthcare-A systematic review.Frontiers in public health · 2023Pooled it
- Understanding Health-related quality of life in rheumatologic diseases: insights from PROMISJournal of patient-reported outcomes · 2026Article
- Patient-reported outcome measures (PROMs) and clinical decision-making in inflammatory rheumatic conditions: a systematic review.Rheumatology advances in practice · 2026Review
- Feasibility of implementing a codesigned patient reported outcome measures (PROMs) collection system for older adults in acute and sub-acute hospital settings.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- How and Who? Examining Real-World Evidence of Engagement and Use of an Electronic Patient-Reported Outcome Smartphone Application in Routine Clinical Care for Patients With Inflammatory Arthritides.ACR open rheumatology · 2025Article
- Healthcare consumer acceptability of routine use of the EQ-5D-5L in clinical care: a cross-sectional survey.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- 'It is important to feel invited': what patients require when using the Utrecht Symptom Diary - 4 Dimensional, a qualitative exploration.Palliative care and social practice · 2024Article
- Experiences with and perception of patient-reported outcome measurement in patients undergoing knee and hip replacement in Germany.Journal of patient-reported outcomes · 2023Article
- Article
- Facing the challenges of PROM implementation in Dutch dialysis care: Patients' and professionals' perspectives.PloS one · 2023Article
- From individualised treatment goals to personalised rehabilitation in osteoarthritis: a longitudinal prospective mapping study using the WHO international classification for functioning, disability and health.Annals of medicine · 2022Article
- Clinical integration of patient-reported outcome measures to enhance the care of patients with SLE: a multi-centre prospective cohort study.Rheumatology (Oxford, England) · 2022Article
- Impetus of US hospital leaders to invest in patient-reported outcome measures (PROMs): a qualitative study.BMJ open · 2022Article
- Patients' and parents' perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Validation and Adjustment of the Patient Experience Questionnaire (PEQ): A Regional Hospital Study in Norway.International journal of environmental research and public health · 2021Article
Corrections and comments
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Authors and funding
7 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesPatient-reported outcome measures (PROMs) are increasingly utilized in the evaluation of patients with rheumatic diseases. The aim of our study was to assess the patient experience with completing PROMs within rheumatology clinics, and identify patient characteristics associated with a more positive experience.
methodsWe conducted a retrospective cross-sectional study of adult patients seen in rheumatology clinics between 1/1/2017 and 6/30/2017. Patients were included in the study if they completed at least one patient-reported experience question following completion of PROMs. Patient characteristics associated with more positive experiences were identified through multivariable proportional odds models.
results12,597 adult patients (mean age 59 ± 15; 76% female; 84% white) completed PROMs, as well as questions on their experience completing PROMs. Patients agreed/strongly agreed that PROM questions were easy to understand (97%), useful (84%), helped their physician understand their health (78%), improved communication with their provider (78%) and improved control over their own care (70%). Predictors of better experience with PROMs included being younger, non-white, having lower income, and being a new patient. Worse self-reported health also predicted better experience with PROMs.
conclusionOur study found a positive patient experience with PROMs, which is a crucial component of their successful implementation and utilization. Findings from this study suggest PROMs may be particularly beneficial in new patients, minorities, those with lower income, and worse self-reported quality of life. Collecting PROMs could provide opportunities to improve patient-provider communication and enhance control over care for rheumatology patients who could most benefit.
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