Evidence map›Paper›PMID 33170127›Full record

ArticleJMIR pediatrics and parenting2020

Availability and Quality of Web Resources for Parents of Children With Disability: Content Analysis and Usability Study.

Anabel Buteau-Poulin, Camille Gosselin, Andréa Bergeron-Ouellet, Jocelyne Kiss, Marie-Ève Lamontagne, Désirée Maltais, Christiane Trottier, Chantal Desmarais

Open access · goldAbstract read
In one paragraph

Article in JMIR pediatrics and parenting, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.6field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 11 citations in OpenAlex.

  1. An expert-based assessment of the quality, reliability, understandability, and readability of ChatGPT responses on cerebral palsy.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 1 institution in 1 country.

Anabel Buteau-PoulinRehabilitation Department, Université Laval, Québec, QC, Canada.ORCID https://orcid.org/0000-0002-0884-2072
Camille GosselinRehabilitation Department, Université Laval, Québec, QC, Canada.ORCID https://orcid.org/0000-0002-6398-0590
Andréa Bergeron-OuelletRehabilitation Department, Université Laval, Québec, QC, Canada.ORCID https://orcid.org/0000-0001-7454-8341
Jocelyne KissMusic Department, Université Laval, Québec, QC, Canada.ORCID https://orcid.org/0000-0001-6215-0360
Marie-Ève LamontagneRehabilitation Department, Université Laval, Québec, QC, Canada.ORCID https://orcid.org/0000-0002-3301-7429
Désirée MaltaisRehabilitation Department, Université Laval, Québec, QC, Canada.ORCID https://orcid.org/0000-0002-4941-3055
Christiane TrottierPhysical Education Department, Université Laval, Québec, QC, Canada.ORCID https://orcid.org/0000-0002-8185-4133
Chantal DesmaraisRehabilitation Department, Université Laval, Québec, QC, Canada.ORCID https://orcid.org/0000-0002-6313-2591
Université Laval · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe internet is a valuable resource for parents of typical children, who are looking for information about their children's growth and development and how to boost them. However, for parents of children with special needs, especially for non-English-speaking parents, there are anecdotal reports stating that specific and accurate information is not available on the internet.

objectiveThis study aims to describe the type of information available on the internet for French-speaking parents of children with disability as well as assess the quality of the information collected.

methodsWe carried out a search of the existing relevant websites targeted at parents of children with disability. We used a validated instrument to extract structural, textual, and visual characteristics of these websites and evaluate their usability.

resultsIn all, 42 websites were analyzed; of these, the information had been validated by a trustworthy source in only 18 (43%) websites. Networking opportunities for parents were available in only 7 (17%) websites. Most websites provided information related to autism spectrum disorder (20/42, 42%) and learning disabilities (19/42, 45%), and only a few websites discussed other disability types such as behavorial disorders and developmental language disorders (4/42, 10% each). Community, social, and civic life (9/42, 22%); domestic life (12/42, 29%); and mobility (15/42, 36%) were the less frequently covered topics. With regard to the usability evaluation, 22 of the 42 (52%) websites received a global score <70%, whereas 20 (48%) scored ≥70.

conclusionsAlthough the internet is an infinite source of information, it is not necessarily actionable for parents of children with disability. Some information remains difficult to find online, and networking opportunities with other parents dealing with similar challenges are scarce.

Indexed as

disabled childhealth knowledgeinternet-based interventionparentsvalidation study

Identifiers

PMID33170127
PMCPMC7685918
OpenAlexW3091756143

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.