Evidence map›Paper›PMID 33160349›Full record

ArticleBMC musculoskeletal disorders2020

A patients' view of OA: the Global Osteoarthritis Patient Perception Survey (GOAPPS), a pilot study.

Marianna Vitaloni, Angie Botto-van Bemden, Rosa Sciortino, Xavier Carné, Maritza Quintero, Pedro Santos-Moreno, Rolando Espinosa, Oscar Rillo, Jordi Monfort, Francisco de Abajo and 10 more

Open access · goldAbstract read
In one paragraph

Article in BMC musculoskeletal disorders, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
3.7field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 36 citations in OpenAlex.

  1. Trial
  2. Article
  3. Review
  4. Article
  5. Review
  6. Article
  7. Review
  8. Article
  9. Review
  10. Article
  11. Participation in healthcare consultations: A qualitative study from the perspectives of persons diagnosed with hand osteoarthritis.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  12. Article
  13. Article
  14. Giving an account of patients' experience: A qualitative study on the care process of hip and knee osteoarthritis.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  15. Article
  16. Article
  17. Article
  18. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors at 11 institutions in 6 countries.

Marianna VitaloniOsteoarthritis Foundation International (OAFI), Barcelona, Spain. mvitaloni@oafifoundation.com.ORCID http://orcid.org/0000-0002-4250-3525
Angie Botto-van BemdenArthritis Foundation, Atlanta, USA.
Rosa SciortinoDe los Andes University, Merida, Venezuela.
Xavier CarnéHospital Clinic, Barcelona, Spain.
Maritza QuinteroDe los Andes University, Merida, Venezuela.
Pedro Santos-MorenoBiomab - Centro de Arthritis Reumatoide, Bogota, Colombia.
Rolando EspinosaInstituto de Medicina Nacional de Rehabilitación, Ciudad de Mexico, Mexico.
Oscar RilloHospital. I. Pirovano, Buenos Aires, Argentina.
Jordi MonfortHospital del Mar, Barcelona, Spain.
Francisco de AbajoUniversity of Alcalá (IRYCIS), University Hospital Principe de Asturias, Madrid, Spain.
Elizabeth OswaldOsteoarthritis Foundation International (OAFI), Barcelona, Spain.
Marco MatucciUniversity of Florence, Florence, Italy.
Patrick du SouichUniversity of Montreal, Montreal, Québec, Canada.
Ingrid MöllerInstitut Poal, University of Barcelona, Barcelona, Spain.
Montserrat Romera BauresHospital de Bellvitge, Hospitalet de Llobregat, Spain.
Arlene VinciArthritis Foundation, Atlanta, USA.
Deborah ScottonArthritis Foundation, Atlanta, USA.
Marco BibasOsteoarthritis Foundation International (OAFI), Barcelona, Spain.
Guy EakinArthritis Foundation, Atlanta, USA.
Josep VergesOsteoarthritis Foundation International (OAFI), Barcelona, Spain.
Arthritis Foundation · USUniversity of the Andes · VEBellvitge University Hospital · ESHospital Clínic de Barcelona · ESHospital Del Mar · ESInstituto Nacional de Rehabilitación · MXJohn D. and Catherine T. MacArthur Foundation · USUniversidad de Alcalá · ESUniversitat de Barcelona · ESUniversité de Montréal · CAUniversity of Florence · IT

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundGlobally, osteoarthritis (OA) is the third condition associated with disability. There is still poor treatment in OA but science holds the key to finding better treatments and a cure. It is essential to learn what's important to patients from them to implement the most effective OA management. The OA Patients Task Force, conducted the Global OA Patient Perception Survey (GOAPPS)-the first global survey made by patients to analize the quality of life (QoL) & patient perceptions of care. The goal was to collect data on OA patients' perception of OA to understand patients' needs and expectations to improve OA management.

methodsObservational, cross-sectional study by online survey data collection from six countries, translated into three languages. The questionnaire was comprised of 3 sections: patient demographics and clinical symptomology characteristics; relationship with physicians: perception of attention, treatment, and information provided; and OA impact on daily activity and QoL. The results of the survey were evaluated using the Limited Data Set. The survey results were analyzed using descriptive statistics to characterize the patients' answers. Additionally, Cronbach's alpha was calculated to determine internal consistency validity.

resultsA total of 1512 surveys were completed in 6 countries. 84.2% of respondents reported pain/tenderness and 91.1% experienced limitations to physical activities. 42.3% of patients were not satisfied with their current OA treatment. 86% had comorbidities, especially hypertension, and obesity. 51.3 and 78% would like access to additional drug or additional non-drug/non-surgical treatments respectively. 48.2% of patients perceived their QoL to be affected by OA. The Cronbach's alpha was 0.61.

conclusionsOA has a significant impact on patients' daily activities and their desire to play an active role in managing this disease. Patients are seeking additional treatments, especially no pharmacological/no surgical treatments stressing the need for investing in clinical research, implementing OA preventive measures, and managing interventions to improve the healthcare value chain in OA.

Indexed as

OsteoarthritisQuality of LifeCross-Sectional StudiesHumansPerceptionPilot ProjectsSurveys and QuestionnairesGlobal surveyOsteoarthritisPatient organizationsPatient perceptionQuality of life

Identifiers

PMID33160349
PMCPMC7648975
OpenAlexW3095594663

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.