ArticleBMJ open2020
Patient needs and priorities for patient navigator programmes in chronic kidney disease: a workshop report.
Article in BMJ open, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it, 56 citations in OpenAlex.
- The renewed Development Model for Integrated Care: a systematic review and model update.BMC health services research · 2025Pooled it
- The Role of Emotions in Health Literacy and Patient Education: Trends, Technologies, and Future Opportunities-A Scoping Review.Healthcare (Basel, Switzerland) · 2026Review
- The Ethical Foundations of Accompanying Patients: The Need for Institutionalization.Journal of bioethical inquiry · 2026Article
- Recommendations for Living Kidney Donor Follow-Up in Canada.Clinical transplantation · 2026Article
- Are your kidneys okay? Detect early to protect kidney health.Kidney research and clinical practice · 2026Article
- Are your kidneys ok? Detect early to protect kidney health.Renal failure · 2025Article
- Patient involvement in nephrology research.Nature reviews. Nephrology · 2025Article
- Are your kidneys ok? Detect early to protect kidney health.Clinical and experimental nephrology · 2025Article
- Are Your Kidneys Ok? Detect Early to Protect Kidney Health.American journal of hypertension · 2025Review
- Systematic Review of Patient and Caregiver Involvement in CKD Research.Kidney international reports · 2025Article
- The Role of Aboriginal Kidney Health Mentors in the Transplant Journey: A Qualitative Evaluation.Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals · 2025Article
- Are Your Kidneys Ok? Detect Early to Protect Kidney Health.Kidney international reports · 2025Article
- Involving Patients in the Design of Clinical Trials in Nephrology.Journal of the American Society of Nephrology : JASN · 2025Article
- Are Your Kidneys Ok? Detect Early to Protect Kidney Health.Canadian journal of kidney health and disease · 2025Article
- A qualitative study on the lived experiences of individuals with end-stage kidney disease (ESKD) accessing haemodialysis in Northern Ghana.BMC nephrology · 2024Article
- Global use of electronic patient-reported outcome systems in nephrology: a mixed methods study.BMJ open · 2023Review
- Feasibility and acceptability of involving bilingual community navigators to improve access to health and social care services in general practice setting of Australia.BMC health services research · 2023Article
- Perspectives of a proposed patient navigator programme for people with chronic kidney disease in rural communities: Report from national workshops.Nephrology (Carlton, Vic.) · 2022Article
- Patient Navigators for CKD and Kidney Failure: A Systematic Review.Kidney medicine · 2022Article
- Patient-centred clinical trial design.Nature reviews. Nephrology · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
22 authors at 5 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
objectivePatients with early chronic kidney disease (CKD) face challenges in accessing healthcare, including delays in diagnosis, fragmented speciality care and lack of tailored education and psychosocial support. Patient navigator programmes have the potential to improve the process of care and outcomes. The objective of this study is to describe the experiences of patients on communication, access of care and self-management and their perspectives on patient navigator programmes in early CKD. DESIGN, SETTING AND
participantsWe convened a workshop in Australia with 19 patients with CKD (all stages including CKD Stage 1 to 5 not on dialysis, 5D (dialysis), and 5T (transplant)) and five caregivers. All of them were over 18 years and English-speaking. Transcripts from the workshop were analysed thematically.
resultsFour themes that captured discussions were: lost in the ambiguity of symptoms and management, battling roadblocks while accessing care, emotionally isolated after diagnosis and re-establishing lifestyle and forward planning. Five themes that focussed on patient navigator programmes were: trust and credibility, respecting patient choices and readiness to accept the programme, using accessible language to promote the programme, offering multiple ways to engage and communicate and maintaining confidentiality and privacy. Of the 17 features identified as important for a patient navigator programme, the top five were delivery of education, psychosocial support, lifestyle modification, communication and decision-making support and facilitating care.
conclusionPatient navigator services can address gaps in services around health literacy, communication, psychosocial support and coordination across multiple healthcare settings. In comparison to the existing navigator programmes, and other services that are aimed at addressing these gaps, credible, accessible and flexible patient navigator programmes for patients with early CKD, that support education, decision-making, access to care and self-management designed in partnership with patients, may be more acceptable to patients.
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Registered trials
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