Evidence map›Paper›PMID 33150424›Full record

ArticleJournal of the American Medical Informatics Association : JAMIA2021

Public attitudes toward an authorization for contact program for clinical research.

Nyiramugisha K Niyibizi, Candace D Speight, Charlie Gregor, Yi-An Ko, Stephanie A Kraft, Andrea R Mitchell, Bradley G Phillips, Kathryn M Porter, Seema K Shah, Jeremy Sugarman and 2 more

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of the American Medical Informatics Association : JAMIA, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.4field-weighted citation impact, top 32% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 4 citations in OpenAlex.

  1. Selecting EHR-driven recruitment strategies: An evidence-based decision guide.Journal of clinical and translational science · 2022
    Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 6 institutions in 1 country.

Nyiramugisha K NiyibiziGeorgia Clinical and Translational Science Alliance, Emory University School of Medicine, Atlanta, Georgia, USA.
Candace D SpeightGeorgia Clinical and Translational Science Alliance, Emory University School of Medicine, Atlanta, Georgia, USA.
Charlie GregorInstitute of Translational Health Sciences, University of Washington, Seattle, Washington, USA.
Yi-An KoDepartment of Biostatistics and Bioinformatics, Emory University Rollins School of Public Health, Atlanta, Georgia, USA.
Stephanie A KraftDepartment of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA.
Andrea R MitchellGeorgia Clinical and Translational Science Alliance, Emory University School of Medicine, Atlanta, Georgia, USA.
Bradley G PhillipsDepartment of Clinical and Administrative Pharmacy, University of Georgia College of Pharmacy, Athens, Georgia, USA.
Kathryn M PorterTreuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, Seattle, Washington, USA.
Seema K ShahResearch Ethics, Stanley Manne Research Institute, Ann and Robert Lurie Children's Hospital of Chicago, Chicago, Illinois, USA.
Jeremy SugarmanJohns Hopkins Berman Institute of Bioethics, Baltimore, Maryland, USA.
Benjamin S WilfondDepartment of Pediatrics, University of Washington School of Medicine, Seattle, Washington, USA.
Neal W DickertGeorgia Clinical and Translational Science Alliance, Emory University School of Medicine, Atlanta, Georgia, USA.
Emory University · USSeattle Children's Hospital · USUniversity of Washington · USJohns Hopkins Berman Institute of Bioethics · USNorthwestern University · USUniversity of Georgia · US

Funding

Transform Dissemination and Implementation Science in CTSA ProgramsUL1TR002319 · NCATS · UNIVERSITY OF WASHINGTON · PI John K. Amory · 2017 to 2026
$100.0M
Implementing a Maternal health and PRegnancy Outcomes Vision for Everyone (IMPROVE)UL1TR002378 · NCATS · EMORY UNIVERSITY · PI Andres J Garcia, Elizabeth O. Ofili · 2017 to 2026
$92.1M
NCATS NIH HHS UL1 TR002319NCATS NIH HHS UL1 TR002378
6 · The paper itself

Abstract

We conducted an online experimental survey to evaluate attitudes toward an authorization for contact (AFC) program allowing researchers to contact patients about studies based on electronic record review. A total of 1070 participants were randomly assigned to 1 of 3 flyers varying in design and framing. Participants were asked to select concerns about and reasons for signing up for AFC. Logistic regression and latent class analysis were conducted. The most commonly selected concerns included needing more information (43%), privacy (40%), and needing more time to think (28%). A minority were not interested in participating in research (16%) and did not want to be bothered (15%). Latent class analysis identified clusters with specific concerns about privacy, lack of interest in research, and not wanting to be bothered. A novel flyer with simple and positive framing was associated with lower odds of both not wanting to be bothered (P = .01) and not being interested in research (P = .01). Many concerns about AFC programs appear nonspecific. Addressing privacy, lack of interest in research, and not wanting to be bothered warrant further study as ways to enhance recruitment.

Indexed as

Attitude to HealthBiomedical ResearchPatient SelectionPublic OpinionAdultAgedFemaleHumansLatent Class AnalysisLogistic ModelsMaleMiddle AgedPrivacySurveys and QuestionnairesYoung Adult

Identifiers

PMID33150424
PMCPMC7883977
OpenAlexW3094986284

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.