ArticleJournal of the American Medical Informatics Association : JAMIA2021
An implementation model for managing cloud-based longitudinal care plans for children with medical complexity.
Article in Journal of the American Medical Informatics Association : JAMIA, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 18 citations in OpenAlex.
- Rural-urban disparities in primary care and geographic continuity of care for children with medical complexity.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2026Article
- Neurodevelopmental outcomes and predictors among late preterm infants: a 6-month prospective cohort study.BMC pediatrics · 2025Article
- Article
- Family Experiences of Integrated Care for Children With Medical Complexity: A Scoping Review.Child: care, health and development · 2025Article
- Rural-Urban Disparities in Hospital Services and Outcomes for Children With Medical Complexity.JAMA network open · 2024Article
- Feasibility of Implementation of a Mobile Digital Personal Health Record to Coordinate Care for Children and Youth With Special Health Care Needs in Primary Care: Protocol for a Mixed Methods Study.JMIR research protocols · 2023Article
- Caregivers' Experiences With a Web- and Mobile-Based Platform for Children With Medical Complexity and the Role of a Live Platform Coach: Thematic Analysis.JMIR pediatrics and parenting · 2023Article
- Using health information technology to support the needs of Children with Medical Complexity: Mapping review of consumer informatics applications.Frontiers in digital health · 2022Review
- A Study of Cloud-Based Remote Clinical Care Technology.Journal of healthcare engineering · 2021Article
Corrections and comments
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Authors and funding
8 authors at 4 institutions in 2 countries.
Funding
Abstract
objectiveWe aimed to iteratively refine an implementation model for managing cloud-based longitudinal care plans (LCPs) for children with medical complexity (CMC). MATERIALS AND
methodsWe conducted iterative 1-on-1 design sessions with CMC caregivers (ie, parents/legal guardians) and providers between August 2017 and March 2019. During audio-recorded sessions, we asked participants to walk through role-specific scenarios of how they would create, review, and edit an LCP using a cloud-based prototype, which we concurrently developed. Between sessions, we reviewed audio recordings to identify strategies that would mitigate barriers that participants reported relating to 4 processes for managing LCPs: (1) taking ownership, (2) sharing, (3) reviewing, and (4) editing. Analysis informed iterative implementation model revisions.
resultsWe conducted 30 design sessions, with 10 caregivers and 20 providers. Participants emphasized that cloud-based LCPs required a team of owners: the caregiver(s), a caregiver-designated clinician, and a care coordinator. Permission settings would need to include universal accessibility for emergency providers, team-level permission options, and some editing restrictions for caregivers. Notifications to review and edit the LCP should be sent to team members before and after clinic visits and after hospital encounters. Mitigating double documentation barriers would require alignment of data fields between the LCP and electronic health record to maximize interoperability. DISCUSSION: These findings provide a model for how we may leverage emerging Health Insurance Portability and Accountability Act-compliant cloud computing technologies to support families and providers in comanaging health information for CMC.
conclusionsUtilizing these management strategies when implementing cloud-based LCPs has the potential to improve team-based care across settings.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.